For over two weeks now i have had the pain in my upper right side,now i have the itching which by all accounts is sending me doo lally. Is there anyone here that also has Systemic lupus erythematosus? I had a bad lupus flare a couple of months ago, i was too wiped to eat properly - well actually i slept on and off for two months [ofcourse not good sleep where you wake up feeling refreshed and ready to go - no the catnap sleep which makes me feel depressed, anxious and lethargic] I am taking Ursodeoxycholic Acid along with various other medications but i couldn't take the one pescribed for the itchiness as it made me vomit if i ate anything. Early this year i was told that i was malnourished. I am so mentally and physically tired that i can lose days and the only reason i do try and eat a little is when my alarm goes off to take various medications but sometimes the tiredness gets the better of me. I have an old poorly dog Lily and she has been my rock. She wakes me at 6.30 each morning for a wee and we do some gentle exercise. If its a good day after i have eaten porridge and had some green tea i try and create something crafty or arty - i have a two hour window i try and make the best use of it. Lily knows when i need to sleep, she goes inthe garden and does a twenty minute poddle, chatting to the feral cats etc and then we go back to bed for a nap before medication alarm number two. Thus my day wanders on, every four hours i drink water,get up let Lily out, do some stretches and go back to bed. This has been my worst year, i have had two long hauls in hospital, my bone pain has increased and i have had two major Lupus flares but today i am climbing walls with the itchy skin.
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