I have just been diagnosed with PBC and have been reading through comments and suggestions. My GP has told me nothing and I have no idea what my blood test results indicate. I did not realise there were 4 stages! I will now arm myself with appropriate questions and get back to my GP, so thanks all. Never heard of PBC before so had no idea what was going on.
I have a lot of joint pain (some periods of itchy skin/scalp) and have been to GP about it several times in recent years. I was getting so tired and feeling unwell, thought some of it was down to IBS. Being a female, now in my early fifties a lot of the PBC symptoms seem to cross over into menopausal symptoms so that has not helped with diagnosis. The liver function issue was picked up when I had blood tests to check hormones etc.
I have been prescribed Urso 4 x 250mg per day, follow up blood test in 6 months to check progress. The leaflet with the medication says monthly blood tests in the first 3 months, so I will take this up with GP also. Not having any major side effects of the Urso, except almost everything tastes awful and scalp a bit itchy.