Joint pain

Hi all

for the last 4 weeks i have been suffering with painful joints, fingers, wrists and ankles so bad that it is waking me up at night, just wondered if anyone knew if this is one of the side effects of PBC or something else? I am at the moment waiting for x-ray results to see if it is arthritis, the pain is getting me down a little as i am exhausted with not having much sleep.

Thank you

5 Replies

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  • Hello Tina,I have similar problems, in fact it was during investigation of my joint pain that my pbc was discovered.Unfortunately I still don't have any answers as to what the problem is but I see a rheumatologist who is still looking.If you haven't been referred to a rheumatologist it may be worth seeing if your doctor will refer you.It is very wearing the pain as well as the pbc fatigue .I hope you get some answers soon.Jane.

  • Hi Tina, I was diagnosed just over a year ago with PBC within 2 days of starting on Urso I was experiencing painful joints. I was told to stop the medication and retry in a month, which I did with no where near the discomfort. I wake in the mornings with stiff sore joints I also have them if I have been still too long, but this eases with moving around. I also feel better when I have walked to work approx 7500 steps. I am trying not to think too much about it being a side effect or symptom. I read this week that painful joints can be experienced when we are perimenopausal, I am just 50. Stay positive and enjoy gentle walks. Alison

  • Here is a link to the Mayo Clinic's "PBC Symptoms" page - bone, muscle and joint pain is listed as one of the symptoms. Mind you though, it is always wise to have these things checked with your doctors as NOT everything is PBC related.

    mayoclinic.org/diseases-con...

  • Yes I was like that too. It was how I was finally diagnosed investigating my joint pains that they found the pbc.

  • I also suffer with pain in my joints and my fingers and toes are badly deformed, i can't remember whether it is rheumatoid arthritis or Osteoarthritis i have. Also the base of both thumbs, my wrists, shouders, the base of my spine an my right hip cause me many sleepless nights. I am on morphine twice a day but often do not take the morning dose as it makes my brain wooly and with the tiredness i would never get anything done. Some people that i have spoken to opt for surgery, though a few said it had made things worse, other people said injections helped but i can't have those as i have a blood disorder. Persist with your Rheumatologist, if the pain stops you from having a good quaity of life then it is important to persist with getting help. Brightest Blessings to you.

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