Writing to see if someone can shed some light on my huband's issues. His siuation is further complicated by the fact that we have lived in 3 different countries since he first got sick.
It all started in 2012 when he got very fatigued, with headaches and body aches. He could hardly get off the sofa. After seeing a doctor it turned out his liver readings were way off. After follow up with a gastrospecialist they concluded he had Non-alcoholic fatty liver disease. He was at this point a bit on the heavy side and as he improved we thought that was it. We then moved country and he felt bad again, mainy fatigued and headaches. He saw a specialist in Singapore who also though he had NFLD. However, as he was not happy with this doctor and he had lost 15kg and started excercises he saw another gastro specialist in Singapore. A great doctor, who he then stayed with for about 2 years. During these 2 years he have had several rounds of bloods tests, ultrasounds, liver biopsi and gastroscopies and endoscopies. After the initital tests and round of eliminations, PBC was a possibility although he is AMA negative ( also tested several times). He was put on a round of Ursofalk. He was also diagnosed with Tropical Sprue and put on antibiotics. Over the years he has dips of fatigue, body aches and headaches and his immune system seems to be very low. His vitamine D levels are low. As it was all looking like PBC the doctor finally did a biopsi. He even said to my husband he was getting rather sure it was PBC, something he has never said before. However, luckily the bioposy came back fine! The Dr. could not believe it and had them re-run the tetst. As he continued to feel rough off and on he had another gastrscopi which confirmed traises of Tropical Sprue (fatigue is the most common side affect) so he was put on antibiotics again.
As he continues to have dips in his health we have a niggling feeling there is something more. Could he still have PBC even being AMA negative and having a clear biopsi? I am not 100 % on his readings but think is AST has ranged from 94-27. ALT from 99-34 and GGT from 251-34. He has also on a few occasion been a bit sore on his liver.
It has been a rough road with highs and lows, thinking it was PBC and then so happy it seemed it was not. However, something is not right and we are tip toeing around it. I am constantly looking and watching his health and he is doing his best to ignore it..... We are comforted by the fact that his liver biopsy was find and that the Dr in Singapore was great BUT..... Looking back I think he has had these issues much longer, remembering him having odd bugs and dips way back. He has also lived in some odd places (Nigeria, Liberia etc) and had malaria.
We are yet again in a new country (Switzerland) so do we again try and find a good Dr.? What will they find that the Dr in Singapore could not????
Anyone has any ideas?