Hi everyone! I'm quite new here (just been diagnosed PBC) and I would like to ask whether anyone else has suffered the same symptoms and discussed about the cure with a doctor (my doctor says these symptoms has nothing to o with PBC and that's she does not say anything :)...).
I have been suffering a massive hair loss during one year. I have been taking Adursal only 3 months so this must be something else than hair loss caused by the medicin. I also have a very low ferritine level which can of course be the reason for hair loss, too. The interesting question is that is it safe to take iron tablets when you have PBC (I think there are different opinions about this matter). I also would like to know if anyone has taken biotin - is it safe? What other elements would be helpful - magnesium, d-vitamin, zink? Have you eaten all these tablets at the same time (I have heard for example that magnesium and d-vitamin can not be taken at the same time)?
At the same time it feels like all my muscles are in some kind of a spasm (calves, achilles, plantars, shoulders, neck, head - and especially jaw) and what is interesting is that all spasms are mainly in the right side of the body (as liver, too). Is it possible that there is a certain nerve inside/near the liver that causes these problems? The doctors have been laughing at me when I have asked this but in my opinion it makes quite sense doesn't it :)...the phrenic nerve? Anyone else suffering for example jaw pain?