Newly diagnosed with PBC in July 2016 after itching for almost 12mths. Just had the results from my biopsy that say I am stage 3 of 6 (my understanding is there were 4?!) with definite fibrosis and significant inflammation, indicative of the disease being aggressive which they do see in younger people (I'm 36) my consultant is going to leave me on urso until my next appointment in December then potentially looking at introducing a steroid as in some cases this can help to address the inflammation. Does anyone have any experience of this?
On another note I had a septoplasty in February 2016 that has not gone well, and still not healed as well as giving me a significant hole in my septum which wasn't there before. Anyway to cut a long story short I need a full nose job to put this right with cartlidge from my ear and skin grafted from somewhere else. I've seen the ENT consultant today and he says without a doubt I need the op to put it right, but my PBC means that he is unable to operate as he feels it will leave me in a worse situation as my condition will mean it won't heal. My PBC consultant is happy for me to have the op provided I didn't have cirrhosis, which I don't, before bothering her again I just wanted to see if anyone had any experience in this.
To say I'm a bit confused and feel like one step forward three steps back is an understatement.
Thanks in advance Jayne X