Bad days!: Diagnosed with pbc in June and I... - PBC Foundation

PBC Foundation

9,386 members7,990 posts

Bad days!

Lcagar63 profile image
4 Replies

Diagnosed with pbc in June and I am on 1000mg of urso. Had a dexa scan and ultra scan get results in a couple of weeks. Recently had fingerprint bruising Lowe part of body especially abdomen. Last few days I have felt so tired and weak. Headache, pain in hips and thighs. Not sleeping well, woke up and I was so wet with sweat as if I had a bath. Sometimes feel nausea. Hopefully it won't last long, need a few good days. Sorry to bore you all just need to get it off my chest.

Written by
Lcagar63 profile image
Lcagar63
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Yvonnejulie profile image
Yvonnejulie

Sorry you having a rough time at the moment, I also suffer from the dreaded hip pains, I was low on vit D so was given a boost of it and they felt a little better so maybe worth getting that tested out, just try and do what your body wants at the moment and rest and sleep as much as you can, a better day will come and you will have more of them than the bad days, good luck with the scan results, I'm waiting for my dexa results to come back so let us know how you get on.

Lcagar63 profile image
Lcagar63 in reply to Yvonnejulie

Thanks for your reply yvonnejulie. Today I feel a lot better. Amazing what 24 hours can do. Hopefully some good days to come. Thank you for your kindness

butterflyEi profile image
butterflyEi

Have you had a recent blood test including a test for your thyroid if not maybe worth checking. PBC can make you very tired and unfortunately it also comes with joint pain. Like Yvonnejulie I had low vitamin D which I supplement with a spray under the tongue daily. Also because of Pernicious Anaemia I am vitamin B12 deficient. It is worth checking that out as well. If you have any tummy problems it is possible you are not converting the vitamin B12. Doctors do not always pick up on these missing vitamins. I think A and K are also important to keep us balanced.

Take some time out to take care of yourself whilst you come to terms with the PBC for many of us when newly diagnosed the stress of taking it all in can use our reserves leaving us feeling really poorly.

Hope you soon feel a bit better

best wishes

Lcagar63 profile image
Lcagar63 in reply to butterflyEi

Thanks butterflyei for replying. I do have an under active thyroid as well. Today I feel a lot better. Amazing what 24 hours can do.hopefully I will now have some good days for a while.thank you for your kindness

You may also like...

Fatigue and nausea- good days and bad days?

for PBC- awaiting my bloods and liver scans. I've been having excessive tiredness for the last few...

Bad days

just recently diagnosed with pbc and still on a learning curve. Am on urso and was told it was for...

Bad reaction to bites?

(who's bites I react badly to) but in the last month I have had a particularly bad reaction to...

Dealing with bad itiching

I was diagnosed with PBS 2 months ago. I have had many questions. I deal with the fatigue...

Bad nausea

everyone I've been on Urso now for about 1 month and have started with quite bad nausea waves...