Complaints: Had another cancelled appointment... - PBC Foundation

PBC Foundation

9,484 members8,376 posts

Complaints

Chazzy profile image
14 Replies

Had another cancelled appointment and facing an 18 week wait... anyone know the complaint process and going private?

Written by
Chazzy profile image
Chazzy
To view profiles and participate in discussions please or .
14 Replies
Lisacj profile image
Lisacj

I'm at Kings college and they seem to change appointments regularly. I was wondering if other hospitals were the same? Where do you go? Does any one out there go to Royal Free? Are they the same? Thanks

Chazzy profile image
Chazzy

Was at Barnsley but left cos of cancellations and lack of confidence in consultant. Changed to st James in Leeds and cancelled appointment and re referred so another 18 week wsit

Becca75 profile image
Becca75

this was at a hospital?

I"m sorry that's horrible. If you're not sure of the complaint procedure, go straight to the top and when they question you about whether or not you went through the complaint procedure, just say you don't know what it is. and while you're talking to him tell him your issues!

that must be so frustrating.

Chazzy profile image
Chazzy in reply toBecca75

Yeah hospital! Everyone says don't worry about it obv not serious but easy saying that when it's not them!

jemlola profile image
jemlola

Hi Chazzy

Might be worth contacting the Patient Liaison Service at your local Hospital Trust. I know that I once contacted them when I was being messed about with appointments. They were really helpful and managed to get the information that I had been unable to get.

I have attached a link about Pals

nhs.uk/chq/Pages/1082.aspx?...

Chazzy profile image
Chazzy in reply tojemlola

Thank you going to contact them. Just so annoying when u want something sorting!! Thank you

jemlola profile image
jemlola in reply toChazzy

Hi Chazzy

Good luck I hope you get it sorted. It is so frustrating, as the appointments are an opportunity to gain reassurance, to become more knowledgeable about your progress and to ask questions. In a sense they are a milestone and when they are cancelled it does feel like your life is on hold, and it can become difficult to focus on other things than the condition.

That said please try to remain positive, life sometimes has a way of sorting things out for you.

x

Twinkle26 profile image
Twinkle26

Hi Chazzy

On hospital info you should have complaint procedures.

But I usually get new date and go see dr and tell them to write to the specialist and say I'm stressed with the waiting etc.

I always phone the specialists secretary too and email anyone connected to get an earlier appointment and it's usually quicker than the complaints process.

Good luck.

Twinkle

Chazzy profile image
Chazzy in reply toTwinkle26

Thank you. Made a dr appointment but that's got a wait too. So crazy the system

Your GP can do a more urgent refferal , when your First referred to a consultant your GP will base this on routine or urgent Depending on any dx or test results. As you have already seen a consultantnt and this is a referral due to a cancellation I would speak to your GP to get this sorted for you Iam sure if they will, if they see how worried you are.

I went private for a different issue some years ago I just called the private hospital and made my appointment then had to get the GP to do the refferal as they needed all the medical notes. So ypur GP can do this for you if you choose to go that route.

Chazzy profile image
Chazzy in reply to

How much was private?

Made a gp appointment but there's a weeks wait for that too!!! Grr

in reply toChazzy

I think it would depend on the hospital but I paid £240 for the first consultation half an hour. Return appointments and further tests were charged separate. This was 3 years ago . But you can call your chosen hospital and get the costs at no obligation.

Chazzy profile image
Chazzy in reply to

Oh didn't know that, will give them a bell x

My appointment to see the liver consultant was changed. I'm supposed to see them every six months but the new date isn't until November so will be nearly nine months. I'm not happy. Makes you feel like doctors don't care about PBC patients !!!!!!!

Mike

Not what you're looking for?

You may also like...

My Hands

OK here is what has been going on, over the last year my right hand has changed dramatically it...
LisaBamaArd profile image

Grateful for this forum

Hi All So it's Thanksgiving time in America and I just wanted to say how grateful and thankful I am...
EileenUSA profile image

Elevated AST, ALT and cholesterol

Hello! What causes liver enzymes to change within two weeks? I had blood work on 2/12 and the AST,...
Amodel2001 profile image

Scared

I’ve been diagnosed with AIM and PBC for about 2 years now and it’s stage 3 systematic and now it’s...
Sarita75 profile image

How is pbc diagnosed

Hi just a quick question I've been suffering from fatigue and muscle pain and stomach problems pain...
Oldbloke1 profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.