At the time I was diagnosed withh PBC over twenty yeaes ago, I also was diagnosied with FM although I never felt I had it..this diagnosis has gone on on for years. Knee pain, lower back., sometimes by face would hurt and tingle and I couldnt touch my hair..this I thought was nerve pain. I also felt tired after exercise and still do and cant sit well in the cinema or peoples houses with low back chairs for example and need a soft bed.
Does this seem familar as part of PBC? I am now on urso but it is quite late and my lfts are pretty raised and my liver was marked as 12.5 on the fibroscan.....,,but my back is somewhat better now I have given up gluten.
When members of this site day they have bone pain..what is that exactly please?.