Why insidious? Well. I have AIH/PBC overlap with Hashimotos disease (untreated) and 6 weeks ago I had a DEXA bone scan. I have the results back and I am not impressed folks; not at all. It says there is evidence of osteopenia. This is not osteoporosis but it means I could develop it. When I saw the letter my thoughts were that I now need to look this word up and see what it means, and if you just google osteopenia, you get all kinds of answers until you google osteopenia and autoimmune disease; then you get a set of completely different answers, and if you are a person who has one or two autoimmune diseases, the links become so blatantly obvious.
It says that osteopenia is a complication of autoimmune disease and if you have more than one autoimmune disease then you are more susceptible to this condition. Also one of the first, if not, the first connection that comes up on the list is Hashimotos disease...well yeha! whoe'd have thunk it.
I am still adamant that if my hashimotos disease was treated when it started which was 26 years ago after the birth of my second son, then I would not be in the situation I am now. My first thyroid nodule was discovered in 1989, and i had all the symptoms which over the years had worsened rather than improved. I was given all kinds of medications for all kinds of symptoms and they never once thought about treating the underlying problem (thyroid) nor did they positively say I had hashimotos disease; all they said was we need to wait and see. After years of badgering them to actually listen to me; in January 2012 I finally got a diagnosis of hashimotos, then in March 2012 I became very ill and spent 6 weeks in hospital to find out I had AIH/PBC overlap and yes research proves that they are directly linked...and now osteopenia, again related.
I am so fed up and wonder what is going to be under attack next; talk about stressed out. Autoimmune disease is seriously insidious. The next problem will be to make the consultant understand that it is autoimmune so folks am going armed to the teeth with clinical studies and proven links....
I am going to do further research regarding the links betwen everything autoimmune...positive note here, I am on a steroid reduction, and currently on 2mg per day and hoping I can drop these because with challenged bones we don't need to stress them more with steroids.
I will let you know what the results from seeing my consultant is but oh the fun and games I will have trying to get it sorted properly.
Take care x