Hi I am new to the site and wondered if anyone has had a similar experience or can offer advice about PBC.
In August last year I was tested for coeliac as I was having digestive problems. Test results showed no allergy but I was quite anaemic and put on iron straight away and referred for an endoscopy.
This started a whole chain of events that has led to a referral for PBC. The endoscopy showed blood vessels that were oozing (watermelon stomach it's called) and these were cauterized. A test was then done for liver function and the abnormal results meant a referral to see a a specialist. I had a liver biopsy in January as the liver function tests were borderline and this has shown both PBC and AIH so my consultant has written to a liver specialist at another hospital for a second opinion but has started me on Urso in the meantime. Is it normal to wait a year for a diagnosis? Also my gp had never heard of PBC and is as much in the dark as I am! Any advice would be helpful, this seems like a supportive, friendly site