Having been diagnosed with PBC for about 8 years I've had regular LFTs done and a couple of scans which showed no scarring or fatty deposits so I suppose I've been coasting along pretty much in denial about having this condition.
After my last annual meeting with the consultant he declared himself satisfied that my levels (though not perfect in all cases) were holding and not giving him any concern - especially as I have never experienced any itching or signs of jaundice.
He suggested tho that I have another ultrasound and fibroscan as my last one was a few years ago.
I had both today and when the doctor had finished I asked what she had seen and she said obviously my liver was cirrhotic and I should see my doctor to discuss the results.
I felt stunned and asked her how badly scarred it was and she just shrugged, so I asked were we talking bad enough for a liver transplant (expecting her to say 'God, no!) but she just warned me that an operation like that could also be deadly.
So I felt even more shaken but asked her as calmly as I could, on a sliding scale, how bad would she rate my cirrhosis and she replied 'mild to moderate ' but I should save my questions for my doctor.
I left the hospital feeling for the first time since diagnosis that I've been given a death sentence and just had to share my experience and feelings with you lot as you're the only people who really understand how this feels.
My final question to her was if there was anything I could do to alter this condition and she said 'No' except avoid overloading my liver with toxins as much as possible.