I was recently diagnosed with PBC - June 2015. Prior to the diagnosis I had been itching for about 18months but I put it down to other things - as my itch is predominantly concentrated on my feet I blamed the heat, the cold, athletes foot, fungal nail etc etc until it became unbearable and I consulted my GP. The GP diagnosed similar and said it was contact dermatitis too so I spent months applying creams unnecessarily which achieved nothing.
I eventually went back to my GP last September with three small but annoying symptoms - one was the itch, another was repeat and constant styes on either or both of my eyes (at least every 10-14 days), the third is a series of red marks which I'm getting on my arms and legs. Basically If I scratch, bruise, knock, mark my skin or get a spot I'm now left with a very inflamed mark which never heals - some days they are pinky/red, other days they look like burns. People have actually asked me if I've had cigarettes stubbed out on my arms! Due to these things combined, constantly being told by people I look jaundiced and/or I am a terrible colour, and finally the fact I have had family members pass away with liver cancers, they started looking further.
Diagnosed with PBC in June and so far I've been taking the medication about 2 weeks or so (colestryamine and ursodeoxycholic acid). The colestryamine/questran is a bit like swallowing sand or grit but I've just been using fresh orange juice with it to try and mask the taste. It's not pleasant but hopefully I will see an improvement.
The hospital seemed to gloss over the marks on my skin and my eyes. They said the marks were not liver related and referred me to a dermatologist and said nothing at all about my eyes. I'd be interested to know if anyone else with PBC has similar symptoms?