Saw a specialist today in Sydney .....so thought I would share this with u all . He told me that pbc is prevalent in some areas in UK due to the water ! He spent 6 yrs working in Queen Elizabeth Hospital in Birmingham .
He also told me never to take two antibiotics.......Clavulinic acid (Augmentin in Australia) and Flucloxacillin as they harm the biliary ducts in the liver .
He asked me if I had taken HRT ? So estrogen may well be a factor in triggering Pbc . He told me that the titre of antibodies was not relevant as they change according to other things eg like taking anti biotics .
He also told me that the older you are at diagnosis the better ....I guess that's obvious .
I'm an identical twin ......we both have the antibodies but no symptoms as yet ...we take part in the twin research at St Thomas's Hospital but we may look for a researcher who may be interested in us in the UK . I live in Sydney in the winter .
Hope you found this of interest ! All the very best to you all !