Plaquenil

[Nellies47]

Hi.

I am AMA positive, pbc diagnosis. Chronic sinusitis and autoimmunehypothyroidism. Recent arthralgia and myalgia and raised crp, esr, and platelets for last 4 months. Rheumatologist feels it may be lupus, wegeners or sirgons.

ANA , ANCA negative. On vimovo then arcoxia. They helped for a short time.

Today I'm started on plaquenil. Does this sound like anyone else's symptoms and treatment. Are the side effects to plaquenil severe.

Thank you.

Nelly

[Mooka]

You can check out the symptoms for GPA (wengers) on the vasculitis U.K. website. Sinusitis is one of the symptoms but you will need a biopsy to confirm diagnosis. ANCA negative doesn’t rule out ANCA vasculitis. Everyone is different with the side effects to plaquinil. I had it before I got a diagnosis with no problems. Do make sure you get your eyes tested though. I know you are at a horrible stage but you will have to wait for the doctors to give you a diagnosis. If you are not at a specialist centre you could ask for a referral to one to rule it in or out. Addenbrookes deals with both vasculitis and lupus. Good luck let us know how you get on.

[Nellies47 in reply to Mooka]

Hi.Thanks very much for the reply. I had a biopsy 1 month ago of sinusitis, I'm waiting for the result. I'm seeing a rheumatologist so I'm not sure who else to see.

Thank you.

Nelly

[Mooka in reply to Nellies47]

A rheumatologist should be able to help you but some are better than others. Have you chased up the results of your biopsy? You could ring the consultant’s secretary.

[Nellies47 in reply to Mooka]

Thank you. They are on hols at present.