I was diagnosed with Wegeners Granulomatosis... - Vasculitis UK

Vasculitis UK

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I was diagnosed with Wegeners Granulomatosis, now known as Granulomatosis with Polyangiitis, 20 years ago this month.

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John_MillsVolunteer
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My wife Susan has written my vasculitis story for the VUK website for those who have an interest.

vasculitis.org.uk/john-mill...

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John_Mills
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SandieB profile image
SandieB

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Good morning John hope you are keeping well.

I have just read your story and does it bring back memories, i started with WG 33years ago(only 70 known cases in GB then) and like you it has been a struggle leaving me with lots of other illnesses too. A credit to Susan for writing your story. Take care and both of you stay safe.

GPASufferer profile image
GPASufferer

Dear Dr. and Mrs. Mills,Thank you for sharing your story! You paved the way for us. It was a relief to read that we can live a long fulfilled life after being diagnosed with GPA. Thank you for your work and research on GPA bringing it to the forefront so that people like me can be diagnosed before we are coughing up blood.

Sandy

U.S.A.

michichgo profile image
michichgo

Thank you, John, for sharing.

I am thankful for the difference you've made, for me and countless others, in advancing the cause of vasculitis patients! Be safe. Be well.

tara88 profile image
tara88

I remember finding vasculitis uk I was a very frightened 44 year old mother of two just diagnosed with GPA the information and support you and Susan provided me over the past 6 years has helped me my family and colleagues understand some what. I remember joining the Thames walk we all did to raise money for research we all felt a belonging to this group of people who shared experiences and stories. Giving hope to others to keep on going.Thank you lovely story Susan that many will relate to.

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