I have come off prednisolone gradually on a couple of occasions. The last time I had a synachen test and was put on a small dose of hydra cortisone 10mg as the results showed I wasn’t producing enough natural steroid.
After being on it for 2 years and feeling ok I wanted to revisit coming off steroids as I don’t want to be on them for life and I know your body can recover and make it’s own natural steroid and this won’t happen whilst you are on medication.
My consultant has swapped me again to prednisolone as there are not small enough doses of prednisolone and I am trying to reduce from 2mg every 3 months. Some more basic blood tests have shown my body is only producing a low level of natural steroid on its own and to my dismay I am shattered all the time.
I just wondered has anyone had any experience of their own adrenal system recovering? I was told that hydrocortisone is a more natural form than prednisolone by one consultant - but another just laughed and said a steroid is a steroid?
Just wondering if I’m wasting my time spending another 9 months struggling with fatigue only to be simply told to go back on a higher dose of steroids. My endocrinologist consultant seemed to struggle answering my questions.