I was diagnosed with granulomatosis with polyangiitis (GPA) last month after 6 months of testing / vasculitis being suspected and am waiting to be seen by rheumatology to start immunosuppressive treatment.
Those of you who were not in hospital when you were treated by rheumatology for vasculitis, how long did you wait and how did you cope in the meantime?
I understand that in its current state the GPA is not life threatening for me but it is now 7 months on (and 2 years after I was very ill and in hospital with what they now think was actually a vasculitis flare) and I am finding all of the waiting a bit frustrating. I was planning on changing jobs and moving this year but that has all had to been put on hold until I start treatment). I also keep developing flu like illnesses every couple of months which completely knock me out. Is this normal / a common experience before treatment?
I'm 24 and work full time.