Henoch Schonlein Purpura Parent/Patient Focus Group Meeting - Sunday 5th March

[Suzym2u]

Saturdays Patient Symposium and Gala Ball was followed by a parent/patient focus group meeting on the Sunday. 17 parents and 10 children attended this meeting led by Dr Louise Oni Consultant Paediatric Nephrologist from Alder Hey Hospital Liverpool. " "Identifying the Needs and Priorities of parents and patients diagnosed with HSP"

[Yeprat]

What a star Dr Oni is.

Meeting others with HSP knowledge was very helpful.

Watching the Children contribute (and play), considering what they and their parents have/are going through was inspirational.

As "adult HSP" observers at the meeting, if anyone at the focus group wishes to contact us, please send a private message.

John & Christine.