Saturdays Patient Symposium and Gala Ball was followed by a parent/patient focus group meeting on the Sunday. 17 parents and 10 children attended this meeting led by Dr Louise Oni Consultant Paediatric Nephrologist from Alder Hey Hospital Liverpool. " "Identifying the Needs and Priorities of parents and patients diagnosed with HSP"
Henoch Schonlein Purpura Parent/Patient Focu... - Vasculitis UK
Henoch Schonlein Purpura Parent/Patient Focus Group Meeting - Sunday 5th March
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Suzym2u
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What a star Dr Oni is.
Meeting others with HSP knowledge was very helpful.
Watching the Children contribute (and play), considering what they and their parents have/are going through was inspirational.
As "adult HSP" observers at the meeting, if anyone at the focus group wishes to contact us, please send a private message.
John & Christine.
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