Henoch Schonlein Purpura Parent/Patient Focus Group Meeting - Sunday 5th March

Henoch Schonlein Purpura Parent/Patient Focus Group Meeting - Sunday 5th March

Saturdays Patient Symposium and Gala Ball was followed by a parent/patient focus group meeting on the Sunday. 17 parents and 10 children attended this meeting led by Dr Louise Oni Consultant Paediatric Nephrologist from Alder Hey Hospital Liverpool. " "Identifying the Needs and Priorities of parents and patients diagnosed with HSP"

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  • What a star Dr Oni is.

    Meeting others with HSP knowledge was very helpful.

    Watching the Children contribute (and play), considering what they and their parents have/are going through was inspirational.

    As "adult HSP" observers at the meeting, if anyone at the focus group wishes to contact us, please send a private message.

    John & Christine.

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