Hi I'm Rene and I was diagnosed in 16.10.93 with vasculitis.can you tell me if there are any support groups in Durban South Africa

[Renesheik]

Hi I'm Rene I was diagnosed with vaculitis 16.1013 please can you tell me if there are any support groups in Durban South Africa

[Suzym2u Moderator Vasculitis UK]

If you write to John Mills, chairman of VUK he will try and locate support for you if he can.  [e-mail] 

[Albasain]

Hello Rene,

I'm sorry to say that there are no support groups for Vasculitis in South Africa. However, Vasculitis UK does have brilliant information on the disease through their "Route Map to Vasculitis". You can contact them via [e-mail] or through me via [e-mail]. John Mills is very knowledgable on the subject. 

The Vasculitis Foundation also has a website too.

When I was first diagnosed with vasculitis I too looked for a support group in London, UK and found none so I started my own. It now covers most of Greater London and the adjacent Home Counties. You could start your own support group in South Africa. I'm sure Vasculitis UK will offer advice in doing so or, again, you could just contact me about this. 

The HealthUnlocked site is also very good for help and advice.

I hope that this helps.

Best wishes,

Dave

[saloshnaidoo]

Hi Rene would love meet you. I am fighting Malaysians since 1984-sarcodosis since 1998-rmdr tb -2000 n pulmonary embolism since 2005....I am in blood thinners, cortisone s, and a plug in unit -oxygen I am in Durban. Please let me know where u from so we can meet...I am planning around opening a support group...many u wanna n part of it.....

[saloshnaidoo in reply to saloshnaidoo]

Sorry I meant takayashus disease not Malaysians