Having been mismanaged for years by my local hospital in Kent which results in undiagnosed severe heart failure and severe cardiomyopathy I was sent to the Royal Brompton Hospital in London last year. In patient treatment good but the last year as an outpatient, hell on earth! I have not had one follow up appointment with the cardiology team and no echo. I have been forced to really be aggressive and now the hospital is trying to throw appointments at me. I am absolutely annoyed that I have driven my care and not them. They have no priority to CSS patients with heart complications. I have asked them all to investigate why my treatment is non-existent, why they consider severe heart disease requires no care plan and why as a dumb patient, I am driving my treatment and care and I want an apology. I will wait until hell freezes over with the NHS response. I had an ablation consultation in July and should have had a 24 heart monitor. I chased and chased but was told they were all unavailable and with patients. To date, still no test. So avoid the Royal Brompton as the specialist national heart and lung hospital. The state of the buildings split on many sites should ring alarm bells at the substandard quality of healthcare you will all received. Disappointed but at worse, I have no support.