Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for April 2013

How quickly does Chronic Kidney Disease progress

Hi, How quickly does Chronic kidney disease progress if you have WG?

Hidden

•11 years ago

4 Replies

Problems downloading the Spring Newsletter?

I've looked on the Adobe site and I've spoken to the web designer. The web man has confirmed there isn't anything wrong with the server or the PDF. Here...

I've looked on the Adobe site and I've spoken to the web designer. The web man h...

PatriciaAnn

•11 years ago

6 Replies

VASCULITIS UK ANNUAL GENERAL MEETING - 12TH MAY

Only three weeks to the AGM. Details can be found in the flier attached to your Spring Newsletter/Journal, or on the V-UK website. Please book if you are...

Only three weeks to the AGM. Details can be found in the flier attached to your ...

PatriciaAnn

•11 years ago

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Michael Crawford & M.E. www. dailymail.co.uk/femail/article-1362592/Michael-Crawford-reveals-personal-reason-s-stage.html#ixzz1FiLcNh4B

just watched a programme about michael crawford and he had to stop performing for 7 years as he had M.E. he went to new zealand to recover. I think they...

just watched a programme about michael crawford and he had to stop performing fo...

hamble99b

Volunteer•11 years ago

1 Reply

2 months down the line :-)

I thought I'd add an update on no confirmed diagnosis as yet, we're now another 2 months done the line and still no where near a diagnosis, apparently I'm a...

I thought I'd add an update on no confirmed diagnosis as yet, we're now another ...

Sima1952

•11 years ago

8 Replies

NEW VASCULITIS SPRING NEWSLETTER 2013 PDF

http://www.vasculitis.org.uk/content/downloads/newsletter-spring-2013-creator.pdf

http://www.vasculitis.org.uk/content/downloads/newsletter-spring-2013-creator.pd...

John_Mills

Volunteer•11 years ago

11 Replies

Waiting times help

Hi, I posted the other day but have been unwell for 2 years, diagnosed with a PE a year ago but have still been unwell and was told that the clot hadn't...

Hi, I posted the other day but have been unwell for 2 years, diagnosed with a...

Littledot3

•11 years ago

7 Replies

Sensitive teeth

I have recently about two weeks ago, noticed my teeth have become sensitive to hot or cold. Tends to be my front teeth but it can change to others. Not only...

I have recently about two weeks ago, noticed my teeth have become sensitive to h...

cambs13

•11 years ago

20 Replies

Six month problem, not yet diagnosed, inflamed aorta, inflamed artery to kidneys

My niece started having stomach aches and loss of appetite about six months ago. The situation never improved and no diagnosis made despite umpteen trips to...

My niece started having stomach aches and loss of appetite about six months ago....

Shivanjali

•11 years ago

4 Replies

Eating issues with Vasculitis

Hi all, this is quite a sensitive issue but I just wanted to speak up about it to see if anyone else had any similar problems. When I was diagnosed with WG, I...

Hi all, this is quite a sensitive issue but I just wanted to speak up about it t...

Lucylucciano

•11 years ago

7 Replies

Fluoride treatment

My dentist has told me he is going to coat my teeth with flouride on my next visit because I take alendronic acid. He said this is a preventive measure to...

My dentist has told me he is going to coat my teeth with flouride on my next vis...

Mooka

•11 years ago

7 Replies

The first East Midlands Vasculitis Support Group Meeting Saturday April 20th

The very first East Midlands Vasculitis Support Group Meeting will be held Saturday 20th April. Everyone welcome including family and friends. please contact...

The very first East Midlands Vasculitis Support Group Meeting will be held Satur...

John_Mills

Volunteer•11 years ago

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Has anyone been advised not to take Methotrexate because of damage to the kidneys?

John_Mills

Volunteer•11 years ago

9 Replies

bigger t-shirts

can I request bigger sized t-shirts? as I'm a size above those you have. :) thanks, sandra.

can I request bigger sized t-shirts? as I'm a size above those you have. :) t...

hamble99b

Volunteer•11 years ago

4 Replies

South Wales Vasculitis Support Group

Jackie will be holding a VSG in Llantrisant on 1st June. Details of the meeting and Jackie's contact details can be found at:...

Jackie will be holding a VSG in Llantrisant on 1st June. Details of the meeting ...

PatriciaAnn

•11 years ago

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WG, ANCA Positive, Stage 4 Kidney Disease anyone?

My mum had recently been diagnosed and I am so worried! Any feedback or comments from anyone going through the same thing would be much appreciated x

My mum had recently been diagnosed and I am so worried! Any feedback or comments...

lilyloo

•11 years ago

4 Replies

Researchers develop laboratory grown kidneys

Interesting article on new developments in kidney transplant research. http://www.bbc.co.uk/news/health-22123386

Interesting article on new developments in kidney transplant research. http:/...

RichardE

Volunteer•11 years ago

3 Replies

Watery eyes

Hi After reading Andrew Irving's post last week about watery eyes and the operation he had, has anyone else suffered from this and what remedies help? I...

Hi After reading Andrew Irving's post last week about watery eyes and the ope...

jeang

•11 years ago

8 Replies

I have moved to Wales but you have not changed my new address.

Binko

•11 years ago

3 Replies

Advice on four year old boy please?!

Hi, I'm after some advice/opinions/I don't know regarding my almost four year old son. He has been a poorly child since birth really. Suspected Leukaemia a...

Hi, I'm after some advice/opinions/I don't know regarding my almost four year ol...

Lau85

•11 years ago

3 Replies

Only one week to go to theYorkshire North/West Support Group

Only one week to go to the Yorkshire North/West Support group meeting. At The Gomersal Park Hotel, Cleckheaton. Sunday 21st April, 1.30pm to 4.30pm....

Only one week to go to the Yorkshire North/West Support group meeting. At The...

LynneJ

Vasculitis UK•11 years ago

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Stroke victim wrongly sent home from hospital because specialists weren't available at the weekend

This lady has Takayasu's Arteritis. The article is a bit sensationalistic but sadly highlights the problems that delays in diagnosis can cause....

This lady has Takayasu's Arteritis. The article is a bit sensationalistic but sa...

RichardE

Volunteer•11 years ago

2 Replies

Folic acid

I have recently been informed by my GP that my Folic acid is low and I have been prescribed meds for it what I would like to know is what could be the cause...

I have recently been informed by my GP that my Folic acid is low and I have been...

ARFalk

•11 years ago

8 Replies

What about an itch just under the ankle on left foot

Juliew123

•11 years ago

3 Replies

What questions

Hi everyone a quick up date as i have been so poorly.. Got to see my doc on thursday and he is now sending me to see an ENT doctor and i ahve to have a chest...

Hi everyone a quick up date as i have been so poorly.. Got to see my doc on thur...

NannyAlli

•11 years ago

3 Replies

Can anyone recommend a hospital in Scotland that specialise in vasculitis

ken13

•11 years ago

5 Replies

Anyone suffer from painful feet?

Juliew123

•11 years ago

29 Replies

Diagnosed WG last year seeking new hospital & consultant - Royal Free freaked me out. Said no to meds, didn't go down well. Any suggestions?

WG has attacked my ENT over 20 years, wrongly diagnosed asthmatic. Throat lasered last year after 60% closure &serious issues. Surgery sorted me out (private)...

WG has attacked my ENT over 20 years, wrongly diagnosed asthmatic. Throat lasere...

Hidden

•11 years ago

2 Replies

My WG journey continues

I'm still a bit confused! Before my recent nasal biopsy, I was told that cyclo was being stopped after seven infusions, as it no longer appeared to be working,...

I'm still a bit confused! Before my recent nasal biopsy, I was told that cyclo w...

suffolkgirl

•11 years ago

26 Replies

Walk the Worcestershire Way in the news again

http://www.worcesternews.co.uk/news/worcester/10346165.Walking_tall_to_boost_funding/ Some more publicity for us. Hopefully it will help boost the...

http://www.worcesternews.co.uk/news/worcester/10346165.Walking_tall_to_boost_fun...

Wellsie

•11 years ago

1 Reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for April 2013

How quickly does Chronic Kidney Disease progress

Problems downloading the Spring Newsletter?

VASCULITIS UK ANNUAL GENERAL MEETING - 12TH MAY

Michael Crawford & M.E. www. dailymail.co.uk/femail/article-1362592/Michael-Crawford-reveals-personal-reason-s-stage.html#ixzz1FiLcNh4B

2 months down the line :-)

NEW VASCULITIS SPRING NEWSLETTER 2013 PDF

Waiting times help

Sensitive teeth

Six month problem, not yet diagnosed, inflamed aorta, inflamed artery to kidneys

Eating issues with Vasculitis

Fluoride treatment

The first East Midlands Vasculitis Support Group Meeting Saturday April 20th

Has anyone been advised not to take Methotrexate because of damage to the kidneys?

bigger t-shirts

South Wales Vasculitis Support Group

WG, ANCA Positive, Stage 4 Kidney Disease anyone?

Researchers develop laboratory grown kidneys

Watery eyes

I have moved to Wales but you have not changed my new address.

Advice on four year old boy please?!

Only one week to go to theYorkshire North/West Support Group

Stroke victim wrongly sent home from hospital because specialists weren't available at the weekend

Folic acid

What about an itch just under the ankle on left foot

What questions

Can anyone recommend a hospital in Scotland that specialise in vasculitis

Anyone suffer from painful feet?

Diagnosed WG last year seeking new hospital & consultant - Royal Free freaked me out. Said no to meds, didn't go down well. Any suggestions?

My WG journey continues

Walk the Worcestershire Way in the news again

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