WG, ANCA Positive, Stage 4 Kidney Disease anyone?

[lilyloo]

My mum had recently been diagnosed and I am so worried! Any feedback or comments from anyone going through the same thing would be much appreciated x

[quinnster]

I was diagnosed the same 2 years ago,kidney function at 14,had steroid and cyclo treatment ,kidneys back to 50 per cent,has she began treatment yet

hopefully with the right treatment ,kidneys should improve,if you want to ask anymore feel free,or message me,hope this is helpful,and your mum improves

[lilyloo]

Thank you so much for replying, how do I mesage you?

[lilyloo]

Ive just seen how to message you, I will send you a message

[Swissie]

Hi there. I was diagnosed with vasculitis with kidneys at 15% function in January. Have responded really well to cyclophosphamide infusions and prednisone tablets. Feeling great now and blood results improving all the time. Best of luck to your Mum. Feel free to PM me with questions. How is she getting on now?