My niece started having stomach aches and loss of appetite about six months ago. The situation never improved and no diagnosis made despite umpteen trips to doctor, hospital, ultrasound, blood tests, etc. She has been in and out of dr and outpatients for many months now.
Three weeks ago, she had chest pains, difficulty breathing and collapsed, and was admitted to hospital with fluid on lungs. After tests, drs found she has inflammation around aorta, inflammation of arteries to kidneys, and this is probably what was causing the stomach aches. They suspect some sort of vascultis but this is yet to be confirmed. Still doing tests. She was stable for a while but had another episode of fluid build up after diuretic and is awaiting a kidney biopsy. Her parents are yet to meet the actual rheumatologist consultant who is overseeing the case,together with a cardiac consultant they have so many questions but don't seem to be getting answers. We don't know how serious the situation is, if life threatening or otherwise. I have printed off loads of stuff from Vasculitis website which has been really helpful but as we haven't seen consultant yet, hard to put forward questions.
I just wanted to know how long these things can take and how much we can push, even to demand appointment with consultant ? We are in Slough area.