I posted the other day but have been unwell for 2 years, diagnosed with a PE a year ago but have still been unwell and was told that the clot hadn't dissolved and being referred to Papworth regarding surgery they discovered I have an inflamed aorta and pulmonary arteries and suspected vasculitis which was confirmed by a PET scan. I was then referred to Addenbrookes on the 15th March.
I saw a respiratory consultant who is part of the vasculitis team on 15th of April but the appointment was disappointing. He did not have the pictures from my PET scan and said I would see ENT in 2-4 weeks and him again in 6 weeks to discuss treatment. I was upset that I would have to wait another 6 weeks for any treatment.
However, when I received the appointment letter the appointment is infact 8 weeks away. I have called the respiratory clinic at Addenbrookes today who have said they are really busy and do not have any earlier appointments. When I asked about the ENT appointment they said the referral letter had not yet been written and they had a typing backlog. When I spoke to the ENT department they said when they receive the referral it takes them 5 days to send a letter out to me and I then have to then ring to make an appointment and they also have a shortage of appointments. In this case, I am therefore also doubtful that the ENT appointment will take place in 2-4 weeks.
I have contacted PALS at Addenbrookes who said they will raise concerns but got the impression this wouldn't change things.
How long have people had to wait for treatment and am I being unreasonable in thinking that another 8 weeks wait is unsatisfactory?!