Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for April 2013

New to this site, with so many questions! Any help would be very gratefully received.

I've had lupus for many years, with Raynaud's all my life. For the last few years I've had reddish-purple dots coming & going on my fingers & toes, but never...

I've had lupus for many years, with Raynaud's all my life. For the last few year...

roobarb

•11 years ago

8 Replies

West Country Vasculitis Lunch

If anyone is planning to come to the next lunch at the Mill on the Exe in Exeter on Thursday 25 April at 12.00 could you please let me know by this weekend as...

If anyone is planning to come to the next lunch at the Mill on the Exe in Exeter...

DevonLottie

•11 years ago

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did anyone get an email for a HealthUnlocked survey? is it real or a scam? its ok see below

I filled it in. Joel HEALTHUNLOCKED 11 Apr 2013 Thanks RichardE! I can confirm that this isn't a scam All the very best, Joel

I filled it in. Joel HEALTHUNLOCKED 11 Apr 2013 Thanks RichardE! I can ...

hamble99b

Volunteer•11 years ago

14 Replies

Want to take advantage of all our features? Just log in!

not a great subject ,but

does anyone have any links to what survival rates are for vasculitis patients read some stuff,but its all very sketchy,not its not the best subject,but would...

does anyone have any links to what survival rates are for vasculitis patients r...

quinnster

•11 years ago

15 Replies

cold hands and feet

does anyone get cold hands and feet...any advice on how to ease it? sometimes my feet get so cold they hurt or i cant feel them.

does anyone get cold hands and feet...any advice on how to ease it? sometimes my...

lucindaross

•11 years ago

5 Replies

Numbness in hands

Hello, I'm new on this forum, although I have been on the lupus healthunlocked forum since last year. I have been diagnosed with lupus in Sep 2012 and...

Hello, I'm new on this forum, although I have been on the lupus healthunlocked f...

Purpletop

•11 years ago

11 Replies

whats the difference between lupus and vasculitis

I have read alot about vasculitis and have come across lupus .i cant seem to tell the difference between the two.are they both as bad or is one serious than...

I have read alot about vasculitis and have come across lupus .i cant seem to tel...

tracey65

•11 years ago

6 Replies

New Vasculitis Awareness Month tshirt with Logo

http://www.vasculitis.org.uk/shop

John_Mills

Volunteer•11 years ago

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question for moderators

how are the people who run vasculitis uk elected,is it done at an agm? also ,how often is this done and who can stand for election,just curious,as I would...

how are the people who run vasculitis uk elected,is it done at an agm? also ,ho...

quinnster

•11 years ago

2 Replies

What is the best way to cope with a cold?

Having successfully avoided the local bug for weeks.....I've now got it. But I'm not sure how to treat it? At the moment I'm concentrating on steaming,...

Having successfully avoided the local bug for weeks.....I've now got it. But I'm...

BronteM

•11 years ago

6 Replies

How can I predict flare in MPA

My daughter have MPA since 12.2010 She is now in drag induced remission.Her lung and kidnay has been attact by MPA.I'm scared of getting down medication.What...

My daughter have MPA since 12.2010 She is now in drag induced remission.Her lung...

tamidi

•11 years ago

8 Replies

as anyone got aortic stenosis?

any advice or info welcome. sandra.

hamble99b

Volunteer•11 years ago

9 Replies

For information only :- Give Blood ... Urgently need more O- and B- donors to donate as stocks have fallen.

To make an appointment Call 0300 123 23 23 Or Search here http://www.blood.co.uk/

To make an appointment Call 0300 123 23 23 Or Search here http://www.blood.co.u...

John_Mills

Volunteer•11 years ago

3 Replies

New Inspirational Story on the Vasculitis UK website

Andrew Irving was diagnosed with Wegeners Granulomatosis in 2010. Andrew is a keen supporter of Vasculitis UK and is also a keen rally driver... ... :-)...

Andrew Irving was diagnosed with Wegeners Granulomatosis in 2010. Andrew is a ke...

John_Mills

Volunteer•11 years ago

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Yorkshire(North/West) Support Group Meeting

Reminder for the Yorkshire (North/West) Yorkshire Support group meeting. Sunday 21st April, Gomersal Park Hotel, Cleckheaton. My excellent Rheumatology...

Reminder for the Yorkshire (North/West) Yorkshire Support group meeting. Sunday...

LynneJ

Vasculitis UK•11 years ago

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Is this a flare or side effects?

Hi this is my first time posting a question. This is going to be a long winded question sorry. Since July last year I started with nose bleeds followed...

Hi this is my first time posting a question. This is going to be a long winded ...

miss-scarlett

•11 years ago

3 Replies

Two Vasculitis Support Group Meetings in the East Midlands & North Yorkshire plus an informal lunch in the West Country in April 2013

Two Vasculitis Support Group Meetings this month http://www.vasculitis.org.uk/events/east-mids-vasculitis-meeting-Apr-2013...

Two Vasculitis Support Group Meetings this month http://www.vasculitis.org.u...

John_Mills

Volunteer•11 years ago

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I have MPA I`ve realized that for some time, my nerves are not as good as they should be, by this I mean,

if my wife appears unexpectedly through a doorway in the house or a noise, not necessarily a loud bang takes me by surprise, my whole body reacts, as though...

if my wife appears unexpectedly through a doorway in the house or a noise, not n...

Tony-LakeDistrict

•11 years ago

6 Replies

Bleeding nose and shortness of breath plz help

Hello For the last 2 weeks i have had a bloody nose every time i blow it there is loads of blood on the tissue I wake up with the taste of blood in my mouth...

Hello For the last 2 weeks i have had a bloody nose every time i blow it there...

NannyAlli

•11 years ago

9 Replies

Finding good VAsculitis Consultant

Hi I am hoping to move to Teignmouth, Torquay or Newton Abbot in Devon. I have TAK/GCA and am looking for a good consultant who has experience of Vasculitis...

Hi I am hoping to move to Teignmouth, Torquay or Newton Abbot in Devon. I have ...

Coffeebix

•11 years ago

2 Replies

Need help and advice on GI vasculitis

buffy12

•11 years ago

7 Replies

My Doctor Has cut my oxycodene done I am in so much pain ,can she do so without speaking to consultant

Also have problema with surgery

buffy12

•11 years ago

3 Replies

Taking Gabapentin

I have WG with Cerebral Vasculitis involvement. My neurologist wants to introduce me to Gabapentin and my rheumatologist won't comment (or rather wont...

I have WG with Cerebral Vasculitis involvement. My neurologist wants to introdu...

Keymer71

•11 years ago

7 Replies

Nerve testing

Can you tell me what nerve testing can be done for cnsv?

nanny4

•11 years ago

1 Reply

Another new T shirt for Vasculitis awareness month May 2013

Just got to put the logo on this one... available in green black or blue

John_Mills

Volunteer•11 years ago

2 Replies

Interesting article on Wheat and why we should ALL avoid it not just autoimmune sufferers.

http://www.sott.net/article/205172 Copied from another Health Unlocked site.

HiveMind

•11 years ago

8 Replies

New T shirt for Vasculitis Awareness Month in May

New t shirt available in the VUK shop for Vasculitis Awareness Month May 2013 http://www.vasculitis.org.uk/shop

New t shirt available in the VUK shop for Vasculitis Awareness Month May 2013 ht...

John_Mills

Volunteer•11 years ago

4 Replies

Recently diagnosed with large vessel vasculitis after a PE and wondering what treatment will be & if my shortness of breath will improve?

Hi, I’ve been unwell since spring 2011 and finally in May 2012, was diagnosed with a pulmonary embolism. I was given warfarin and although things initially...

Hi, I’ve been unwell since spring 2011 and finally in May 2012, was diagnose...

Littledot3

•11 years ago

5 Replies

Teapigs Matcha

Hi everyone! Hope everyone is well ('ish') ;-) on this sunny morning :-) I have been reading about the benefits of drinking green tea, i'm not hoping for...

Hi everyone! Hope everyone is well ('ish') ;-) on this sunny morning :-) I...

Lucylucciano

•11 years ago

16 Replies

say again? :)

my brother has got a cold and a blocked ear. he was due to meet a friend, the friend arrived ten minutes late "sorry. I've been into town buying cakes for...

my brother has got a cold and a blocked ear. he was due to meet a friend, the ...

hamble99b

Volunteer•11 years ago

10 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for April 2013

New to this site, with so many questions! Any help would be very gratefully received.

West Country Vasculitis Lunch

did anyone get an email for a HealthUnlocked survey? is it real or a scam? its ok see below

not a great subject ,but

cold hands and feet

Numbness in hands

whats the difference between lupus and vasculitis

New Vasculitis Awareness Month tshirt with Logo

question for moderators

What is the best way to cope with a cold?

How can I predict flare in MPA

as anyone got aortic stenosis?

For information only :- Give Blood ... Urgently need more O- and B- donors to donate as stocks have fallen.

New Inspirational Story on the Vasculitis UK website

Yorkshire(North/West) Support Group Meeting

Is this a flare or side effects?

Two Vasculitis Support Group Meetings in the East Midlands & North Yorkshire plus an informal lunch in the West Country in April 2013

I have MPA I`ve realized that for some time, my nerves are not as good as they should be, by this I mean,

Bleeding nose and shortness of breath plz help

Finding good VAsculitis Consultant

Need help and advice on GI vasculitis

My Doctor Has cut my oxycodene done I am in so much pain ,can she do so without speaking to consultant

Taking Gabapentin

Nerve testing

Another new T shirt for Vasculitis awareness month May 2013

Interesting article on Wheat and why we should ALL avoid it not just autoimmune sufferers.

New T shirt for Vasculitis Awareness Month in May

Recently diagnosed with large vessel vasculitis after a PE and wondering what treatment will be & if my shortness of breath will improve?

Teapigs Matcha

say again? :)

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