I'm still a bit confused! Before my recent nasal biopsy, I was told that cyclo was being stopped after seven infusions, as it no longer appeared to be working, and Rituximab was being recommended to take its place. However, since the biopsy, which showed no vasculitis activity, so the cyclo had done its job, I have now been told I will be prescribed Azathioprine as a maintenance drug. The pred is also still being reduced. As Addenbrookes is widely considered to be one of the best places to be treated, I guess I should not be too concerned, but I suspect a possible funding issue here!
My hip has now become much more painful than usual, possibly due in part to the weight gain from the pred! I've had an x-ray and am now taking more painkillers. Have to wait and see what happens next.