I thought I'd add an update on no confirmed diagnosis as yet, we're now another 2 months done the line and still no where near a diagnosis, apparently I'm a bit of a conundrum - well my Mother always said "Born bloody awkward, still bloody awkward" - and Addenbrooke's is talking about a grumbling vasculitis! My ANCA is a weak positive and - via Dr's instructions -I've reduced my pred down to 15mg a day now; thinking of reducing them to 10mg with alternate days to 15mg for 2 weeks and then maintaining at 10mg for a while.
The ENT bods - not Jonny - at Addenbrooke's have discharge me because according to them I have nothing wrong with my ear!!! Plus due to cross over appointments between my local hospital and Addenbrooke's I have been discharged by them - local hosp - as well but what infuriated me was the attitude of the consultant at my local hosp. who when I mentioned the pins and needles on the outer part of my left arm along with the ear pain basically "pooed pooed" it with "we all get those as we get older" remark; although I am prepared to give him the benefit of the doubt as his may not have heard me correctly ha! ha!
So I decided to stop taking the pain killers - which over a period of a couple of weeks I had been reducing from 30/500 Co-Codamol to 8/500 Co-Codamol anyway - last Friday 12 Apr and by Sunday the ear pain had come back magnified by 5 plus the tinnitus was very loud high frequency sound, so back to taking 8/500 although truth be said should probably gone the full hog and taken 30/500, plus along with this I had a vertigo attack which started on Sunday night and although it is still there in the morning I managed to go back to work yesterday; meaning more time off sick! Have decided to keep a log of how I am each day plus keeping a list of any symptoms I have as by the time I go back to Addenbrooke's I may have forgotten some on them and I shall take this with me.
Meanwhile work has employed someone on a full time basis and she is going to take over part of my job, I can see from employer's point of view that they need continuity on that section but it was the ominousness comment my boss made when he mentioned that we - him and me - will have to talk about my job at a later date. Does anyone know whether there is a Government scheme which when your work hours are reduced because of medical problems they - the Government - will pay the hours missing; I seem to remember reading about it somewhere but I can't find it again.
Finally I'd like to add that Dr Meyer the Medical Ophthalmologist at Addenbrooke's - at least he confirmed that the vision loss in my left eye is very likely to be permanent and didn't pussyfoot around the subject - is excellent but if you ever have to see him then take a packed lunch/tea with you; I'm not kidding