Can anyone tell me when it is normal to reduce immunosupressant drugs and/or steroids (I know these should not be reduced together!)?
I have been on prednisolone and mycophenolate mofetil for 2 years now and was expecting some long withdrawal from one or both to begin this year as I have been symptom free for around 9 months. I am now down to 7mg of pred a day (reduced to this 6 months ago) and have been advised not to reduce further. I am also on 1500mg of the MFM. I was told by my specialist that he thinks I will be on these doses for life, which horrifies me as I know there are cancer risks associated with long term use, not to mention the risk from infections!
Is my specialist up to date on current thinking? Any advice, anyone?