Would anyone like to take part in a Vasculit... - Vasculitis UK

Vasculitis UK

7,774 members6,747 posts

Would anyone like to take part in a Vasculitis research project?

John_Mills profile image
John_MillsVolunteer
3 Replies

If you do have ANCA associated Vasculitis and have a close blood relative/s who also have ANCA vasculitis, would you like to take part in DNA analysis research project? Also, if you started with ANCA associated Vasculitis below the age of 18..... Please contact John john.mills@vasculitis.org.uk thank you

Written by
John_Mills profile image
John_Mills
Volunteer
To view profiles and participate in discussions please or .
3 Replies
mandijt profile image
mandijt

I have WG and my maternal grandmother had PBC (auto immune disease that attacks the liver) and my mother has transverse myeletis (auto immune disease that attacks the fibres that cover the spinal cord), my mother's brother also had guillain-barre syndrome (auto immune disease that attacks the nervous system). Quite a colourful history......lol.

John_Mills profile image
John_MillsVolunteer in reply to mandijt

It is... maybe it might be useful to email John with this colourful history

all the best

susan

anthony01 profile image
anthony01

My sister lost her liver and had a transplant, which I believe was due to auto immune system. I have P-anca positive. We are at different hospitals she is at Addenbrookes and I am with St.Georges. Let me know if we might be of help

You may also like...

New App to Support Vasculitis Patients and Research

If you have ANCA vasculitis which has involved your lungs, nose or sinuses, are now in remission,...

Research Study - Survey Regarding Discontinuing Immune Suppression in ANCA Vasculitis

and if vasculitis patients will be willing to take part. If you have ANCA vasculitis, please join...

Does this sound like vasculitis?

know they were there. Went to the hospital who completed blood tests and couldn't find anything and...

Vasculitis & heart problems

EPS so waiting for an ablation. I also have ANCA associated vasculitis which was diagnosed nearly a...

I would like to make contact with anyone who has MPA vasculitis. I am finding all of this a little isolating, anyone out there!!

I was diagnosed in November and have tried hard to keep positive..and I am but don't feel anyone...