Would you all be so kind as to list your top 5 most debilitating Vasculitis symptoms for me?
Rate things like, quality of life, impact on work/home life, physical symptoms etc etc. Also would you indicate what type of Vasculitis you have and how long you have had it and whether you are male or female. No other details are needed and all information is confidential and I would only give it to the student delegates on the day.
Next Tuesday I have the opportunity to attend a teaching course for doctors and nurses at Oxford university and I would like, aside from telling them my own symptoms and how my CSS affects me, to tell how it affects others also.
These are the Dr's & nurses of the future. So PLEASE, if you have the time, these statistics will be HUGELY helpful to them.
Contact me privately, if you do not want to divulge information publicly.