Vasculitis UK needs your help please - Vasculitis UK

Vasculitis UK

7,943 members6,974 posts

Vasculitis UK needs your help please

PatriciaAnn profile image
0 Replies

FOR A CHANGE THE TRUST NEEDS YOUR HELP FOR THE LAUNCH OF THE ROUTE MAP AND FOR VASCULITIS AWARENESS MONTH.

Do you have a story to tell about your vasculitis? Maybe you have achieved something good, like running a marathon, climbing a mountain, or overcoming some adversity.

For the media launch of our Route Map we are to contact national and local and regional newspapers and we want to "piggy back" the launch on stories which will grab the attention of the Editor and of the reader. So these stories need to be something with which the reader can empathise, or feel sorry, or hope it never happens to them. We have Holly's story - overcoming fertility problems and becoming pregnant against the odds.

The idea then is to be able to say that the Trust has been really helpful and that if the Route Map had been available when you were going through your problems (or whatever) how much better this would have been for you and your family - that sort of thing.

So if you will be happy to have the media contact you please let me have a rough idea about your story, let me have your phone number and also the town/city where you live and the name(s) of your local newspaper(s). This is now urgent as the launch will be taking place on 13th May.

If you are selected then I will let you have a preview of the RouteMap. You can't be expected to sing its praises unless you've seen it.

Many thanks. PatriciaAnn (You can e-mail: pat@vasculitis.org.uk

Written by
PatriciaAnn profile image
PatriciaAnn
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

I am seeking help from vasculitis patients

I am seeking help from vasculitis patients. I have one of the types vasculitis, Wegener’s...
Gma61 profile image

Vasculitis awareness – it’s harder than I thought

I take my hat off to all of you who have flown the flag for Vasculitis awareness month by...

Incontinence and cerebral/CNS vasculitis

I just posted something on my own personal Facebook wall, and thought I should post something here...
vivdunstan profile image
Volunteer

What do you think are the unmet needs in Vasculitis?

Vasculitis UK are part of UKIVAS which is the UK and Ireland Vasculitis registry. We meet twice a...

"My Churg Strauss Story" ( EGPA ) Looking for personal stories.

We, at Vasculitis UK, would like to collect some personal stories about people's experience living...
Suzym2u profile image
Moderator

Moderation team

See all
zoe69 profile image
zoe69Administrator
Allotmental profile image
AllotmentalAdministrator
JaneLE profile image
JaneLEAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.