Diagnosed with limited scleroderma a few months ago having had Raynaud's for a while and developing an agonising sore finger. Had heart and lungs checked and so far ok - due a 6 month hospital check in April. Have the red spots on hands, lower arms, shoulders and face, difficulty swallowing certain foods and painful joints but don't suffer as much as a lot of people on here. I take adalat and lansoprazole and I am unbelievably tired all the time. Have had both big toes fused due to arthritis and trapeziectomy on left hand (removal of small bone at base of thumb) - 4 ops in the last 2 years. Fingers very puffy and hard to bend but skin not tight and shiny. I am sitting at the computer wearing thermals, scarf and gloves and still shivering although the central heating is on! Can be snug and warm in bed but then suddenly have cold shivers and can't get warm again.
Am now being checked by my GP as my palms and soles are continually burning but cold at the same time, my ears hiss and ring and I feel b***** awful most of the time as this wakes me up at night! More blood tests but no appointment free until January.
Someone please tell me that this is usual and I'm not just being pathetic as my other half thinks. I work full time in school and I'm finding it increasingly difficult to find the energy or enthusiasm I used to have. Would love to find someone living near me I could talk to.