Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for July 2020

O'Connor family 2.6 challenges

Our #MondayMotivation today is Kathryn O'Connor and her family. Kathryn's dad Bill was due to run his 40th marathon in April, however when the event was...

Our #MondayMotivation today is Kathryn O'Connor and her family. Kathryn's dad Bi...

Administrator•4 years ago

In 'The Times' today

In the Obituaries, the death of Air Commodore Jerry Witts DSO who lived an active and interesting life before his health deteriorated with CBD.

In the Obituaries, the death of Air Commodore Jerry Witts DSO who lived an activ...

•4 years ago

'Ask the Expert' Q & A Session

Following the success of our first Zoom Q&A session, we are pleased to confirm an ‘Ask the Experts’ session will take place during our PSP & CBD awareness week...

Following the success of our first Zoom Q&A session, we are pleased to confirm a...

Administrator•4 years ago

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Swallowing problems

Hi am after some more advice if anybody can help? Mum has been on soft foods for a number of months now and recently I have started her on purée foods but...

Hi am after some more advice if anybody can help? Mum has been on soft foods ...

•4 years ago

The Power of Photos

I remember when every roll of film would be developed, and we would be so excited to see what the results would be! Buying photo albums, ordering doubles, and...

I remember when every roll of film would be developed, and we would be so excite...

•4 years ago

Matt's Mount Ventoux Challenge for PSPA

A massive thank you to Matt Bloice who is currently training for a cycling challenge in honour of his dad, who was diagnosed with PSP in May 2018. Matt's...

A massive thank you to Matt Bloice who is currently training for a cycling chall...

Administrator•4 years ago

Catherine's lockdown challenge

Our #MondayMotivation is Catherine Calvert. Catherine took up running as part of her lockdown exercise and in May challenged herself to run 276 miles for PSPA...

Our #MondayMotivation is Catherine Calvert. Catherine took up running as part of...

Administrator•4 years ago

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Cannabis and psp. https://www.karger.com/Article/Pdf/503864

Does cannabis help?

Does cannabis help?

•4 years ago

Dizziness and psp.

Dizziness is quite bad now. Any advice?

Dizziness is quite bad now. Any advice?

•4 years ago

End of a painful journey

My lovely mother has become one with the angels . After a 5 year battle with PSP she finally succumbed to this terrible disease. Am broken but happy for her .

My lovely mother has become one with the angels . After a 5 year battle with PSP...

•4 years ago

What would you advise me to find out about regarding the PSP diagnosis, before mum leaves hospital?

Hi. My mum has just been diagnosed with PSP aged 90 whilst in hospital after a fall. She fell as a result of a stroke it is believed. Now she is on a stroke...

Hi. My mum has just been diagnosed with PSP aged 90 whilst in hospital after a f...

•4 years ago

Flash, Twinkle and Star!

What fitting names for the 4th of July! Oh my gosh! I spotted another new family just a couple of days before Wiggles and Squiggles took flight! Yes, this...

What fitting names for the 4th of July! Oh my gosh! I spotted another new fami...

•4 years ago

PSP & CBD Awareness Week

We’ve rescheduled our May PSP & CBD Awareness Week to July! Join us between 20 and 26 July to take part in our activities as we aim to raise greater awareness...

We’ve rescheduled our May PSP & CBD Awareness Week to July! Join us between 20 a...

Administrator•4 years ago

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Erratic open bowls

After 8 years with PSP, we had achieved a "certain" regularity with respect to the "open bowls" by applying "Plantaben" daily and intensifying the fiber diet...

After 8 years with PSP, we had achieved a "certain" regularity with respect to ...

LuisRodicioRodicio

•4 years ago

Great difficulties to open the mouth.

After 8 years living with PSP and for about 1 month we have observed increasing difficulties in providing food (in pure form or in a very soft texture) due to...

After 8 years living with PSP and for about 1 month we have observed increasing...

LuisRodicioRodicio

•4 years ago

Shrinkage of the Brain

My wife was suffering for over 4 years with PSP. During the treatment, brain scan MRI showed that her brain was slightly shrunk. Many of the other patients too...

My wife was suffering for over 4 years with PSP. During the treatment, brain sca...

•4 years ago

Fist Pump - The little successes!

I could probably post all the time, because you all understand the journey. I try not to over post here, but I wanted to share this with you all. I have a...

I could probably post all the time, because you all understand the journey. I t...

•4 years ago

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