Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for April 2014

Turmeric

Someone asked about turmeric. The healing benefits of turmeric or better circumin are many. Here is a good site. It is a delicious Indian spice andIgive it to...

Someone asked about turmeric. The healing benefits of turmeric or better circum...

•10 years ago

is it possible to view these PSP cards on line please Debbie? marytea

•10 years ago

would like to get the copy of a poem on PSP. One line state "appears to be not quite there", not exact words.

My husband had PSP and passed on in 2005. Our grandson is doing a school project on PSP and would like that poem and any other info you can send us

My husband had PSP and passed on in 2005. Our grandson is doing a school project...

•10 years ago

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Father in law past away

Sadly tonight my father in law past away, he was only dignosed with psp 8 weeks ago and only had symptoms since Xmas day.. This is a horrible , cruel disease...

Sadly tonight my father in law past away, he was only dignosed with psp 8 weeks...

•10 years ago

swollen ankles - is this usual with PSP

my ankles are extremely swollen + painful is this part of PSP? I have not read of it being so. My GP has put me on a small dose of diuretic that I started this...

my ankles are extremely swollen + painful is this part of PSP? I have not read o...

•10 years ago

after 10 years of caregiving with nothing in sight I think that if the grimm reaper came to my door I would show him in ,normal feeling ?

•10 years ago

Turmeric versus Warfarin?

There have been a lot of posts about taking Turmeric. S has to take Warfarin and I have read somewhere, that Turmeric has some blood thinning properties, so...

There have been a lot of posts about taking Turmeric. S has to take Warfarin and...

•10 years ago

Is there anyway to roughly tell what stage of PSP someone is in? I realize every case is different and there are many bumps along the way

that can affect each patient. Is there a criteria or something for stage 1, stage 2, etc?

that can affect each patient. Is there a criteria or something for stage 1, stag...

Charliesyoungest

•10 years ago

My dad was rushed in hospital today,he's stable at the moment but critical.he has a mask on that is helping him to breathe,

Is it bad that I think he looks so peaceful,when usually he's coughing and choking on phlem,and forever having his mouth and throat suctioned,I keep looking...

Is it bad that I think he looks so peaceful,when usually he's coughing and choki...

•10 years ago

CBD??

I have noticed that there are not many posts about CBD. My husband has just recently in the last 3 months been diagnosed with CBD, but of course it has been...

I have noticed that there are not many posts about CBD. My husband has just rece...

•10 years ago

My husband either moans and groans ALL day long or he coughs constantly. It is awful for him but drives me mad but I know he cannot do

much about it. Dorothy thompson

much about it. Dorothy thompson

dorothy-thompson

•10 years ago

Can anyone give any advice regarding excessive saliva, we are not able to use hyoscine patches as my husband also has glaucoma.

Most days he is constantly drooling and it is also causing problems pooling in his throat causing him to choke, he has nearly lost his cough function so has...

Most days he is constantly drooling and it is also causing problems pooling in h...

•10 years ago

Dad passed away last month from PSP

Hi my dad passed away last month after a fall down the stairs and fracturing his hip. Before the fall he was talking and eating but that all went once he was...

Hi my dad passed away last month after a fall down the stairs and fracturing his...

•10 years ago

Mum fell.

I have been struggling to understand or explain to my mum why she keeps falling backwards. She has been asking me why do i always fall backwards. I thought her...

I have been struggling to understand or explain to my mum why she keeps falling ...

•10 years ago

My mother in law has recently been diagnosed with CBD and is having some problems with writing. Can anyone recommend any specialist pens?

•10 years ago

Can't control his face muscle's

For the last week or so, usually begins at the end of the day. My husband has PSP, CBD or MSA? No one know's for sure , not even Mayo's. He started not...

For the last week or so, usually begins at the end of the day. My husband has P...

•10 years ago

A new PSP Blog and registry

The attached is a link to a newly created, informative blog by Dr. Golbe of Rutgers University, a leader in PSP research. The registry is maintained by...

The attached is a link to a newly created, informative blog by Dr. Golbe of Rutg...

•10 years ago

Advice about accommodation (UK) required if possible.

My step mum has PSP and this post is to help my Dad through very testing times. She was diagnosed many years ago, I can't remember how many years ago but it...

My step mum has PSP and this post is to help my Dad through very testing times. ...

•10 years ago

Am i being selfish?

My father, for around 25 years now, has had leukaemia. Its one of the rarer forms of leukaemia and my mother is his main carer. My brother has mild autism and...

My father, for around 25 years now, has had leukaemia. Its one of the rarer form...

•10 years ago

My father inlaw Diagnosed with psp...

My father inlaw was a active man, lived alone and done everything for himself until Xmas day when he had a fall. He didn't look well after the fall so he was...

My father inlaw was a active man, lived alone and done everything for himself un...

•10 years ago

Had a very emotional few days,my dad is now peg fed,and can take nothing through his mouth,keeping his oral hygiene and making sure his.

Mouth is kept moist,watching him choking on phlem,thank god for the suction machine we got last week,doctor came today and I've asked for patches to reduce the...

Mouth is kept moist,watching him choking on phlem,thank god for the suction mach...

•10 years ago

A helpful medication for anyone who suffers from sleep apnea caused by PSP.

I'll try to give a brief:) summary regarding how my apnea came about...My Neuro recommended a sleep study to confirm or toss out this diagnosis. I thought he...

I'll try to give a brief:) summary regarding how my apnea came about...My Neuro ...

•10 years ago

My father also has PSP, very sad. I am glad I found this sight and have read so many postings. I do have a couple of questions

My Dad doesn't have the spasms yet, but for future reference can anyone tell me if the Baclofen, massage therapy to specific areas helped or even hot or cold...

My Dad doesn't have the spasms yet, but for future reference can anyone tell me ...

Charliesyoungest

•10 years ago

did anyone have relief for a stiff neck using baclofen,thank-you,Rollie

•10 years ago

Hiya my dad has had psp for 4 years, he fell a broke his hip and pelvis and came out of hospital after 10 weeks a month ago. His hip has

Mended and he is now walking with a frame. He is obviously fed up with himself and is quite low. He is being so hard on my mum who cares for him and very...

Mended and he is now walking with a frame. He is obviously fed up with himself a...

•10 years ago

Please if anyone with a clear head please read and post !!!!!!

http://www.medicalnewstoday.com/articles/275082.php

http://www.medicalnewstoday.com/articles/275082.php

•10 years ago

exercise is this good for PSP? CAN IT MAKE A DIFFERENCE?

I have been going to a class that is for Parkinson's people but I am very sore from stretch exercises & wondered if U should be doing them? I looked on a...

I have been going to a class that is for Parkinson's people but I am very sore f...

•10 years ago

Comment from our physio

Hi all, S having a bad time at the moment. Fallen in the shower and may have cracked his hip. Hey ho, another wonderful day in the life of PSP. The physio who...

Hi all, S having a bad time at the moment. Fallen in the shower and may have cra...

•10 years ago

Does anyone have a neck so stiff that all your loved one,or yourself can do is stare straight up ,unable to look forward at any time,thanks

•10 years ago

If you are from the UK, please have a look at our new Poll

We have a new poll starting today. To find it, please click on the Polls tab which you will find above on the blue line (on the same line as Questions, Posts,...

We have a new poll starting today. To find it, please click on the Polls tab wh...

•10 years ago

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