The attached is a link to a newly created, informative blog by Dr. Golbe of Rutgers University, a leader in PSP research. The registry is maintained by Rutgers Robert Wood Johnson Medical School. When one registers, it will allow you to receive rapid notification of clinical trials or other opportunities to participate in research as well as what is going on in the areas of PSP research. Also, it will be a source for PSP-related commercial products, educational programs and patient services. You can read more about it on the home page. You may also consider sharing this with your neurologist. psp-blog.org/
Christine47