Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for April 2013

Physical Therapy

I finally made it to my 1st physical therapy appointment yesterday; tough to arrange, because I need a ride to/from; thought I'd throw that in; no, I'm not...

I finally made it to my 1st physical therapy appointment yesterday; tough to arr...

•11 years ago

WHERE R U ALL FOR THE PARTY TONIGHT?

HI WHERE R U ALL FOR THE PARTY? I AM RUNNING FROM THE PARKINSNONS SITE TO THIS ONE AND GETTING NO ONE NEW ON BOARD LOL JILL

HI WHERE R U ALL FOR THE PARTY? I AM RUNNING FROM THE PARKINSNONS SITE TO THIS ...

•11 years ago

THE ONLINE PARTY IS ABOUT TO START!

SO I AM STARTING WITH THE BEATLES AND HELP GOOD TO DANCE TO SO LGO IN AND LET US KNoW WHAT YOU ARE DOING TO PARTY TONGIHT! LOL jill :-)

SO I AM STARTING WITH THE BEATLES AND HELP GOOD TO DANCE TO SO LGO IN AND LET...

•11 years ago

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hi jill whats going on now its 4 am here pretty dark outside is it happening !!!!!!

•11 years ago

Using a toxin to relax muscles

Does anyone have experience of the use of botulinus toxin (in tiny doses obviously) to release otherwise rigid muscles? My wife's head is now virtually at...

Does anyone have experience of the use of botulinus toxin (in tiny doses obvious...

•11 years ago

Head movements affected by PSP?

I note that when responding to a question with her head my wife's head nod is VERY slight. Her voice is pretty good but somehow coordination to move the head...

I note that when responding to a question with her head my wife's head nod is VE...

•11 years ago

"Please God don't let him be on the floor".

This morning I gave my husband his breakfast and cup of tea, helped him in the toilet, sat him in his chair and put the telly on. I gave him the handset of...

This morning I gave my husband his breakfast and cup of tea, helped him in the t...

•11 years ago

Has anyone with PSP experienced an abrupt change in their sleeping position?

I've consistently been a side-sleeper, fetal position, sometimes on my left, but usually on my right. Over the past 6-8 weeks, I abruptly changed to sleeping...

I've consistently been a side-sleeper, fetal position, sometimes on my left, but...

•11 years ago

Halfway there...

http://kathywblog.wordpress.com/2013/04/14/halfway-to-brighton/

http://kathywblog.wordpress.com/2013/04/14/halfway-to-brighton/

•11 years ago

HI TIME 4 AN ONLINE PARKINSONS/ PSP PARTY

HI ALL TIEM FOR AN ONLINE PARTY AGAIN I SHALL START IT AT 8 PM GMT IN THE UK AS IT IS ALSO PARKINSONS AWARENESS WEEK HERE AND IT IS ON MONDAY 15 APRIL

HI ALL TIEM FOR AN ONLINE PARTY AGAIN I SHALL START IT AT 8 PM GMT IN THE UK...

•11 years ago

Pseudo Bulbar Palsy??

I just wanted to share this with you. Bob, my husband was diagnosed by his neurologist at the movement disorder clinic in Calgary. She made the diagnosis of...

I just wanted to share this with you. Bob, my husband was diagnosed by his neuro...

•11 years ago

Could someone explain the stages of PSP?

•11 years ago

My grandad <3 died at the hands of psp 11.4.13

hey im toni im 20 years old and my grandad had psp, he lived with it for 11 years he was the bravest man i have ever met, he went throough these years of pain...

hey im toni im 20 years old and my grandad had psp, he lived with it for 11 year...

•11 years ago

Could someone explain what a peg is?

I live in Mississauga Ontario Canada. My husband was given the diagnosis of PSP after several years of searching for answers concerning his health issues. I...

I live in Mississauga Ontario Canada. My husband was given the diagnosis of PSP...

•11 years ago

Cognitive problems related to PSP

I'm wondering about cognitive problems. My husband has been getting up EVERY night about an hour after he goes to bed, about the time I am ready to hit the...

I'm wondering about cognitive problems. My husband has been getting up EVERY nig...

•11 years ago

walking

my husband wwas diagnoised in june 2012 with cbd/psp He is supposed to be middle to end stages and is deterioting rapidly he is now unable to walk he was in...

my husband wwas diagnoised in june 2012 with cbd/psp He is supposed to be middle...

•11 years ago

Can you tell me what sort of symptoms of CBD you are experiencing ?

Most of what is talked about is PSP symptoms, as i have CBD i am interested in other symptoms experienced by others?

Most of what is talked about is PSP symptoms, as i have CBD i am interested in o...

•11 years ago

PSP Story With A Touch Of Humor #4

Sunday morning, I was visiting with my daughter, Katy, in the lower level of our rambler. She still has unpacked, partially unpacked, or empty boxes from our...

Sunday morning, I was visiting with my daughter, Katy, in the lower level of our...

•11 years ago

I'm ba-aack!!

It's been a while since my last blog...... http://kathywblog.wordpress.com/2013/04/07/hello-again/

It's been a while since my last blog...... http://kathywblog.wordpress.com/...

•11 years ago

JUDY J, HOW ARE YOU, NOT ANY COMMUNICATION LATELY? XX

HOPE ALL IS WELL LOL TISHA XX

HOPE ALL IS WELL LOL TISHA XX

•11 years ago

Really need advice.

Since my parents have moved in due to dads psp, I have noticed a lot of neglect from my mom in her caring for dad. She doesn't want to be near him, she wants...

Since my parents have moved in due to dads psp, I have noticed a lot of neglect ...

•11 years ago

Incontinence.

My husband wears a conveen day and night but sometimes the night time one comes off and the results are obvious. The company have supplied us with extra fixing...

My husband wears a conveen day and night but sometimes the night time one comes ...

dorothy-thompson

•11 years ago

Coconut oil, pricey!!

Went to St. Albans market this morning, found coconut oil on one of the stalls, i thought, great, found it at last, untill i looked at the price. It was £7.50...

Went to St. Albans market this morning, found coconut oil on one of the stalls, ...

•11 years ago

Are There People With psp Taking Medication For Other Major Ailments Like Diabetes, High Blood Pressure, And Did They Have These Diseases

•11 years ago

PEG

My wife Janet has decided against having a PEG fitted. When asked by our G P what she will do if she cannot swallow she replied I shall starve . He reassured...

My wife Janet has decided against having a PEG fitted. When asked by our G P wha...

•11 years ago

Anxious

Dad has become increasingly more restless. We just get him settled in his chair or bed and he is trying to get up. He is getting less steady with walking and...

Dad has become increasingly more restless. We just get him settled in his chair...

•11 years ago

selling a mobility van

My dad died from PSP nearly a year ago now and since then I've been trying to sell my mum's Wheelchair Adapted Renault Kangoo she used for him. We're having no...

My dad died from PSP nearly a year ago now and since then I've been trying to se...

•11 years ago

Contginuing Care Assessment

Hi everyone, As you will know from my blog my sister passed away on Valentine's Day. Life is hard and I miss her terribly also the routine of visiting her in...

Hi everyone, As you will know from my blog my sister passed away on Valentine's...

•11 years ago

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