I finally made it to my 1st physical therapy appointment yesterday; tough to arrange, because I need a ride to/from; thought I'd throw that in; no, I'm not driving.
First, I feel fortunate & blessed again. My therapist, Mike, went to the U of MN for college/training, & actually participated in a small piece of a large PSP study years back. So, 'viola! I have a practitioner who's familiar with PSP & I didn't have to explain to him what it is and how it affects me. It counter-balances the disappointment I felt with my long-term Internist who admitted to not knowing what it was on 4-1 (posted in an earlier blog).
I was surprised by at least one thing I found out yesterday. I know part of it is because PSP causes muscle rigidity & even muscle tone as I understand it, but my muscles aren't as weak as I thought they were. Especially given my Neuro has me on bedrest but for 3-4 hours of mild activity a day. Mike did give me a list of excersises to do at home twice a day at home. One of the excercises included forcing my neck to align right so I can drop my chin/head down into the natural position. By forcing, I mean focusing. Had me do it several times yesterday and when I concentrated on it, I could do it. This will help much with the chronic pain at the base of my skull as well other various soft tissue issues in that area.
Also, my BMI was perfect; as good as it gets. Think that would've surprised me at my age even if I didn't have PSP. It was nice to hear a few positives yesterday
But, my balance is awful...no surprise there. He had me doing the simpliest of simple things; what stood out was my balance was almost non-existent when he asked me to close my eyes, even just standing. And, how my worsening eye-tracking is one of the major roots of my poor balance.
Even with the mild excercises/movements he had me do, muscles in my lower limbs would involuntarily tremor; he said that wasn't weakness, it was the PSP.
Next week, he wants to do a more thorough eye-tracking evaluation. Also scheduled my 1st occupational therapy appointment back to back. My favorite cousin, Bob, who's retired & lives close to me is providing my transportation to these appointments, including my Neuro appointment tomorrow. God Bless him!