Ive posted a lot lately on this site and you ll see how many issues Ive been having, , and Im a long timer, tapered from dmgs ( which had been on for mos) to 4 mgs in april this year, had some pain on and off and have been told arthris hip back, was told n ed to get off pred been on 8 yrs, started couple week ago to taper to 3 1/2, neen on that dose steady now for 5 days, this last week or teo, all over bidy pain, joints muscles, hands , wtists ankles , hip leg, at the end of my rope.cant hardly look after myself, hands fingers stiff some lock up and severe pain, although this all sounds llike arthritis, cant cope brings me to tears, so Im going to make decision this morning, as Ive read on this forum to increase by 5 mgs that will be 8 1/2 mgs and try that for a week, rhuemy may not be happy with me but I cant live manage with thisvall over bodybpain every day last week or so, rhuemy said mos ago didnt think I had pmr anymore, have virtual appt this wed with him, but I need some relief, so on suggestions from this site ai would drop back to 4 mgs from 8 1/2 after a week, hopefully relieve some pain, and Im suppose to have nerve blocks done in spine on oct 7th for pain from spinal stenosis and degenerative disks, hoping my plan wont interefere with that
cant cope with pain any longer: Ive posted a lot... - PMRGCAuk
cant cope with pain any longer
Good luck arvine it’s miserable!
Probably a good idea to increase by 5mg. Then at least you can check to see if it is the PMR pain that is causing the main pain. Then at least you might get some feel what is the PMR and what isn’t. Hope the nerve blocks go well.
Replied on your other post.
thank you
This really is something you need to get sorted out with your doctor. I would think it is better to try the spinal block first to see if and what it helps without extra oral pred clouding the view. I do realise how awful the pain can be, been there, done that, but your rheumy does have an aim. If your aim and hers aren't the same, you have a problem.
Thanks PMR pro, but I cant stand another day of this pain, and nerve block apt oct 7 th, I increased by 5 mgs this morning so that was 8 1/2 mgs , how long would it take at this dose to see any relief?
Just sending you my best wishes and hoping that the spinal block helps and then maybe the increase in pred after to give you some respite. 💐
Thank you
Arvine , my heart goes out to you and hope you get some relief soon. My partner has acute back pain. Is a nerve block the same as radio ablation therapy? My partner has been badly let down by the pain clinic and none of the strong medication helped so I’m gathering information about other options
No - the only thing the same is the use of a needle and image guidance!!!
I’ve been were you are today and placed on numerous medications including MST’s mine came from my spine and joints osteoarthritis and autoimmune, I would rock with the pain,. It took years of treatment including what you’re having to eventually surgery. You need the right medication to help get your pain under control.
Take care
Wendy xx
Goodness, you sound as “complicated” as me as my dr puts it. It is awful, day after day pain. I have found that extra Pred doesn’t help the stenosis and spine issues. I have the same as you including the joint pain. But it does decrease any inflammation caused by the degeneration and may ease the fatigue and general malaise. I have had several rounds of spinal injections and RFA, the last injections had little effect so now they are talking about surgery although they are concerned about my age 77.) My pain dr has never been interested in the dose of pred I am on as he says his injections are local with only a small amount circulating the body for a short while.
You may find the injections give you good relief. Mine did at first, and RFA kept me going for a couple of years very successfully. Try to keep up your spirits, not too long now for the injections. Do rest for at least 3 days after those. I hope you feel much better soon.
thank you
I had extensive spinal surgery 5mths ago at the age of 79yrs was on 10mgs Pred, my weight was 6st 12lbs the operation was a complete success., so don’t worry hopefully you too will be fine.x
Thank you
That’s so reassuring. Thank you.
I would recommend this cbd cream . My wife is having knee replacement in 2 months. In the mean time she can't sleep and is in constant pain. We are both amazed and didn't believe in this stuff, but she just got a full nights sleep and is grateful for some relief . See pic
you are in the exact same position as I was except I didn’t wait for the pain to get that bad. (Not faulting you). My doctors also said I no longer had PMR and I stupidly followed their advice to get off PMR too quickly. Then the unexplained pain kept into my arms and fingers. So I upped the prednisone by 5mg to 8mg and then dropped it again 10 days later. It did work but then I had another flare
This time it’s not as easy tapering as in the past 2-3 years so I’m back up to 6mg and doing the DSNS taper which may takes years to get back to 1 mg again.
Oh thank you I have increased by 5 this is my 2 nd day on 8 1/2ngs, so will stay on for a week I think then maybe I should continue slow taper again to, was going to go back to 4 mgs?
so sorry to hear this I was similar before diagnosis the pain in the shoulders reduced me to tears and the carpal tunnel in the hands nothing touched it the only think that offered a bit of relief and sleep was co codomol. I do hope you find some relief soon
Thank you
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