Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for April 2024

What time should I take my Pred before hospital procedure with anaesthetic

Good morning everyone I am having surgery on my leg with anaesthetic tomorrow morning & will be admitted at 7am with no food to be taken after 2am only sips of...

Good morning everyone I am having surgery on my leg with anaesthetic tomorrow mo...

JEMOK

•5 months ago

8 Replies

GCA? or something else?

Yesterday was an even more stressful day than most others. I had worked, as I usually do, for about 4 hours online, when I got a twinge of a headache in my...

Yesterday was an even more stressful day than most others. I had worked, as I u...

agingfeminist

•5 months ago

40 Replies

tear in my meniscus cartilage

What a difference two weeks can make. Two weeks ago I you asked if I should attempt a taper to try to force my adrenals to wake up. The circumstances were...

What a difference two weeks can make. Two weeks ago I you asked if I should att...

jinoadby

•5 months ago

10 Replies

Want to take advantage of all our features? Just log in!

Been while since posting, I am completely perfect now, no PMR at all.

I take no meds for PMR and I have no PMR pains at all. Last time I went to Rheumatologist was in like Feb, and since I was fine, I told them I no longer...

I take no meds for PMR and I have no PMR pains at all. Last time I went to Rheu...

sdowney717

•5 months ago

6 Replies

giant Cell

I’m off Prednisone and on Actemra only now. I inject it once a week. Lately been feeling a little light headed and woozy. My blood pressure is fine!

I’m off Prednisone and on Actemra only now. I inject it once a week. Lately bee...

LRevell

•5 months ago

3 Replies

Ozempic?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the weight gain from predizone?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the...

fairtree

•5 months ago

32 Replies

1st Isle of Wight support group meeting 8th May

Hi everyone, if you're based on the Isle of Wight, our new support group there has set up its first meeting for 7.30pm on Weds 8th May at Newport...

Hi everyone, if you're based on the Isle of Wight, our new support group there h...

Fran_Benson

Partner•5 months ago

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Steroid reduction

Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few...

Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood ...

kathyrob

•5 months ago

22 Replies

Severe mental reaction to prednisolone

As you can see if you read my profile I have spent almost the whole of the last 4 months struggling with a long list of frightening mood changes which have and...

As you can see if you read my profile I have spent almost the whole of the last ...

tinlid

•5 months ago

39 Replies

Is this why MTX works for some and not for others?

Another interesting article from my inbox today! I'm sure you are all aware of the excitement about the gut microbiome and also that some people get a good...

Another interesting article from my inbox today! I'm sure you are all aware of t...

PMRpro

Ambassador•5 months ago

9 Replies

Breathless

HelloHas anyone noticed more breathlessness when on higher dose Predisilone?

Teddy23

•5 months ago

5 Replies

Here is a new idea: "The Patient Knows Best ..."

There are doctors, rheumatologists even, who have confirmed something we often suspect: The patient may well know what they need better than their doctor. And...

There are doctors, rheumatologists even, who have confirmed something we often ...

PMRpro

Ambassador•5 months ago

29 Replies

throbbing ribs

Hi I have been completely off steroids since September 2023 for GCA. However I have developed throbbing joints especially in the evenings mainly in my ribs but...

Hi I have been completely off steroids since September 2023 for GCA. However I h...

Marley12b

•5 months ago

4 Replies

Another pred cautionary tale

After yesterday's discussion, I heard from my friend last night that her friend who's had pmr for just over a year, had just come off her pred. She'd started...

After yesterday's discussion, I heard from my friend last night that her friend ...

diana1998

•5 months ago

4 Replies

Tapering Guidelines

Currently on 25mg Pred. Where can the best 'official' tapering guidelines be found. Seeing GP in a weeks time and would like to be prepared.

Currently on 25mg Pred. Where can the best 'official' tapering guidelines be fou...

tonyevans48

•5 months ago

6 Replies

Adrenal fatigue?

I have been suffering the most dreadful fatigue and breathlessness recently with gentle exercise such as walking. I can go to work OK, I'm a plumber and...

I have been suffering the most dreadful fatigue and breathlessness recently with...

Trainy

•5 months ago

42 Replies

lower dose prednisone

Update Took a call from respiratory nurse an hour ago. My respiratory consultant and rheumatologist have had a discussion and decided to keep me on 10 mg of...

Update Took a call from respiratory nurse an hour ago. My respiratory consultan...

Numptybrain

•5 months ago

5 Replies

Stiffness/sore muscles

I have been off prednisolone for 60 weeks now, and on TCX for 4 years, but on 4 weekly jabs for 40 weeks. That fourth week before the jab I usually experience...

I have been off prednisolone for 60 weeks now, and on TCX for 4 years, but on 4 ...

LemonZest11

•5 months ago

21 Replies

chest infection

I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a...

I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking p...

kalgoorlie

•5 months ago

8 Replies

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica,...

I arrived at my appointment for Covid vax this morning, and told the truth, the...

Pixix

•5 months ago

100 Replies

Help for a friend

Friend of mine been diagnosed with pmr. First contact with her doctor looked hopeful, although only prescribed 15 mg. She was then told to start reducing...

Friend of mine been diagnosed with pmr. First contact with her doctor looked hop...

Hidden

•5 months ago

8 Replies

Back/pelvis/hip pain?

A month or 2 ago, I got a new dog, he's bigger than my previous dog and he pulls on the lead. And I got stressed adapting to the change. Somewhere soon after...

A month or 2 ago, I got a new dog, he's bigger than my previous dog and he pulls...

Curious101

•5 months ago

11 Replies

Nominated!

Done.

Tescohednesford

•5 months ago

1 Reply

on methotrexate

hi anyone know answer to this please? if a wheezing problem with lungs - which part on a full blood count would this show up if methotrexate was cause?

hi anyone know answer to this please? if a wheezing problem with lungs - whi...

Hidden

•5 months ago

2 Replies

Incredible Pred Tale

OH's cousin is over from Virginia aged 77. He told me he had pmr January 2022 and was started on 60mg of pred. Gosh! Unbelievably high dose. Reduced fast...

OH's cousin is over from Virginia aged 77. He told me he had pmr January 2022 ...

diana1998

•5 months ago

10 Replies

GCA Questions

Hi Kind Friends, My GCA hit last October, about 6 months ago, and I was put on 60 mg. Prednisone. (I’ve also been on Actemra since November.) I’m doing pretty...

Hi Kind Friends, My GCA hit last October, about 6 months ago, and I was put on ...

Lenore58

•5 months ago

21 Replies

Advice please re sickness bug and taking meds

Hi, I was violently sick yesterday evening and have only managed small sips of water since then. Have stomach pain too and not even thinking about eating...

Hi, I was violently sick yesterday evening and have only managed small sips of w...

Dance62

•5 months ago

6 Replies

advise please re split dose

Can I have some Advise please . I’ve been on 4mg for the last month with another month to go before reducing again (hopefully) and after reading the advice...

Can I have some Advise please . I’ve been on 4mg for the last month with anothe...

MalloryMoss

•5 months ago

10 Replies

PMRGCA UK charity nomination

Just saw this on Facebook in case anyone would like to nominate a favourite (!) charity for a £5000 draw...just search PMRGCA and a good one comes up!...

Just saw this on Facebook in case anyone would like to nominate a favourite (!) ...

Orange_2022

•5 months ago

6 Replies

Arms in sleeves.

We talked about this problem at my knitting club last weekand all had the same problem with arms getting stuck in the sleeves of coats etc. It all came to a...

We talked about this problem at my knitting club last weekand all had the same p...

Booklist

•5 months ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

What time should I take my Pred before hospital procedure with anaesthetic

GCA? or something else?

tear in my meniscus cartilage

Been while since posting, I am completely perfect now, no PMR at all.

giant Cell

Ozempic?

1st Isle of Wight support group meeting 8th May

Steroid reduction

Severe mental reaction to prednisolone

Is this why MTX works for some and not for others?

Breathless

Here is a new idea: "The Patient Knows Best ..."

throbbing ribs

Another pred cautionary tale

Tapering Guidelines

Adrenal fatigue?

lower dose prednisone

Stiffness/sore muscles

chest infection

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

Help for a friend

Back/pelvis/hip pain?

Nominated!

on methotrexate

Incredible Pred Tale

GCA Questions

Advice please re sickness bug and taking meds

advise please re split dose

PMRGCA UK charity nomination

Arms in sleeves.

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