Help for a friend

[Dorsetgirl17]

Friend of mine been diagnosed with pmr. First contact with her doctor looked hopeful, although only prescribed 15 mg. She was then told to start reducing immediately down to 2 and then none at all this was over a seven week period! I said she would be heading for a fall, and lo and behold all the symptoms returned. She went to see another doctor who has put her on 20 which kicked in immediately. I used Dorset Lady’s helpful timetable on slow reduction and she is keen to follow suit. Could you supply your helpful rota please Sue. Thankyou.

[DorsetLady PMRGCAuk volunteer]

Hi,

Have sent you a Chat message….

[piglette]

It does worry me when you hear about doctors who it seems really do not know what they are doing. Particularly as they could be causing a lot of pain to a patient.

[Dorsetgirl17 in reply to piglette]

Absolutely, Healthunlocked was a boon for my three and half year journey and the helpful comments made along the way. Doctors are hellbent on trying to reduce you too early. As I have now gone down with thyroid problems without a satisfactory conclusion I really at my wits end.

[piglette in reply to Dorsetgirl17]

I shudder sometimes when someone new comes along and they tell us some of the total garbage that a doctor, who should now better, has told them.

[DorsetLady PMRGCAuk volunteer in reply to Dorsetgirl17]

Sorry to hear about thyroid issues -we have a few members on here with thyroid problems so always worth asking or maybe look at Thyroid UK forum -if you haven’t already -

healthunlocked.com/thyroiduk

[Dorsetgirl17 in reply to DorsetLady]

Thanks Sue, yes have gone onto that site, but am baffled by their terminology!

[DorsetLady PMRGCAuk volunteer in reply to Dorsetgirl17]

Yes... so maybe ask any questions on here - and say you'd like answers in plain English , non-medical speak!😏

We heave a family trait of dodgy thyroids... both brothers had operations for over-active ones... and my good old mum being super vigilant realised I had issues when I was around 18 years old [being much younger than other siblings] - and prompt action and a short sharp blast of radio-iodine therapy on a slightly overactive thyroid sorted mine out - luckily.

So I have some knowledge - but probably not enough to help...

[Dinahmite]

Oh dear! That doesn't sound right. I was started on 15 at the end of October 2023 and it worked brilliantly but thank goodness was not made to taper so quickly! On Sunday I will go down to 8.5 and so on. Doc is OK with that and letting me get on with it. It's such a lottery which GP you get.