Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,427 members • 38,312 posts

All posts for April 2024

PMR or arthritis?

I was diagnosed with PMR a few years ago and have gone through the process of taking 15mg prednisolone and then reducing- now stuck at 6mg and have tried a few...

I was diagnosed with PMR a few years ago and have gone through the process of ta...

Jackie_boy

•1 month ago

15 Replies

I’m having a GCA flare

hi, I started by taking 60 mg of Prednisolone March 2023 for GCA, I have take 1mg for the last 6 weeks and .50mg for the last 6 days, I am now having a flare,...

hi, I started by taking 60 mg of Prednisolone March 2023 for GCA, I have take 1m...

Grey7

•1 month ago

12 Replies

A&E VIst

Afternoon all Just got back after 6 hours at Hospital to give them credit l was seen straight away . Have spent a month on 9 mg Pred and was going to reduce...

Afternoon all Just got back after 6 hours at Hospital to give them credit l was...

Rose54

•1 month ago

8 Replies

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Early start - when to take Pred?

I'm helping at the start of the London Marathon on 21st. Will be leaving home to walk there at about 6am and probably not home until at least 12pm. I'm on 4mg...

I'm helping at the start of the London Marathon on 21st. Will be leaving home to...

Orange_2022

•1 month ago

11 Replies

The effects of alcohol on polymyalgia/myotisis

My initial diagnosis 3.7 yrs ago was polymyalgia, then aprox 8mths ago Myositis. After a consultation last wk: Likely Seronegative idiopathic inflammatory...

My initial diagnosis 3.7 yrs ago was polymyalgia, then aprox 8mths ago Myositis....

Purpleprimate

•1 month ago

16 Replies

Functional medicine

Hi All, my second post in 24hrs - sorry - but lots of questions as just recently diagnosed with Sjorgen's and likely PMR. I've been on steroids about 5 weeks...

Hi All, my second post in 24hrs - sorry - but lots of questions as just recently...

Soinoi

•1 month ago

30 Replies

omega 3 Vitamin D3

I currently take 1280mg Omega3 with 2000mg D3 supplements daily is this good idea with PMR I’m presently on 7-1/2mg prednisone and tapering I dont eat fish....

I currently take 1280mg Omega3 with 2000mg D3 supplements daily is this good ide...

Januzzi

•1 month ago

15 Replies

Sweating

Hello, I have PMR and GCA. I have had a problem with sweating over a year. Today it was 60 degrees and any little physical activity makes me sweat. Before...

Hello, I have PMR and GCA. I have had a problem with sweating over a year. Today...

Plains

•1 month ago

58 Replies

Chest pain

Hi all, I'm 52 and recently diagnosed with Sjorgen's syndrome and possible PMR... shoulder, leg & hip pain. I was put on 15mg of prednisolone for four weeks...

Hi all, I'm 52 and recently diagnosed with Sjorgen's syndrome and possible PMR.....

Soinoi

•1 month ago

33 Replies

My recent journey in decreasing prednisone

Hello Everyone This is my 8th year having pmr. I have used the slow method many times and have used 2 different meds. to help me. Methotrexate and plaquenil....

Hello Everyone This is my 8th year having pmr. I have used the slow method many...

Linny3

•1 month ago

6 Replies

PMR & GCA, 45 Years Ago

I came across a family health dictionary the other day. It was written in 1979, so I thought it might be interesting to see what the advice on PMR and GCA (aka...

I came across a family health dictionary the other day. It was written in 1979, ...

AtopicGuy

•1 month ago

7 Replies

diet info please

avoided prem as long haul flights pending. Lots of increasing pain so was almost desperate to start meds when home! now day 4 on 15mg and noticeable...

avoided prem as long haul flights pending. Lots of increasing pain so was almos...

Scaredofpred

•1 month ago

4 Replies

BLOOD RESULTS - HELP PLEASE

GP didn't do a great job of translating. My learned friends can probably do much better: ESR 5.8 CRP 5.0 LDL 3.89 HDL 1.89 TC 6.3 (should the LDL and HDL not...

GP didn't do a great job of translating. My learned friends can probably do much...

Missus835

•1 month ago

49 Replies

Is anyone taking methotrexate?

is anyone taking methotrexate ? Please

Debella

•1 month ago

10 Replies

More pred??

Doc increased my pred to 15 mg. I had been on 4.5 for a couple of years. The plan is to get me on Kevzara. Until then, 4 + weeks on 15 mg pred. For the first...

Doc increased my pred to 15 mg. I had been on 4.5 for a couple of years. The pla...

Maggieart

•1 month ago

8 Replies

Oaktree5

Question of technology- is it possible to have Health Unlockrd comments and questions read out like in a podcast? Vision is not good and getting seemingly...

Question of technology- is it possible to have Health Unlockrd comments and ques...

oaktree5

•1 month ago

9 Replies

Tyenne /Tocilizumab

Hi just to say I be just received a letter to say I’m changing from actemra to this brand. Hopefully a lower price will make it an option for more people.

Hi just to say I be just received a letter to say I’m changing from actemra to t...

Devoid

•1 month ago

16 Replies

PMR & Cellulitis

Hi, some of you may remember that I posted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t...

Hi, some of you may remember that I posted a while back asking for tips to cope...

GreatGranny4

•2 months ago

20 Replies

PMR & Cellulitis

Hi, some of you may remember that I Tposted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t...

Hi, some of you may remember that I Tposted a while back asking for tips to co...

GreatGranny4

•2 months ago

14 Replies

Interaction between aspirin and pred.

By way of brief summary I have had PMR since 2020. Over that time I have flared four/five times on tapering to about 5mg. I am currently on 7/6.5mg on a slow...

By way of brief summary I have had PMR since 2020. Over that time I have flared...

SudsSuds

•2 months ago

21 Replies

enteric coated prednisolone

having reduced from 40 mg in 2016 to 3 mg in 2023 I suffered a severe relapse Christmas 2023 due to Covid. I increased to. 10 mg and I’m now on 9 mg April...

having reduced from 40 mg in 2016 to 3 mg in 2023 I suffered a severe relapse C...

rify

•2 months ago

7 Replies

Prednisolone 0.5mg

Hi Everyone, This is actually a follow-up to a previous post which I had told DorsetLady I would keep her informed about. I was issued a prescription for...

Hi Everyone, This is actually a follow-up to a previous post which I had told D...

Malaga47

•2 months ago

16 Replies

More Challenges to Overcome!

Some of you may recall that for some years, I've frequently experienced ectopic beats. They've been calmed down with a lowish dose of a beta blocker...

Some of you may recall that for some years, I've frequently experienced ectopic ...

Kendrew

•2 months ago

129 Replies

Gca hr review

Just had my 2nd meeting with my boss and hr. They are trying to define if I'm just incapable of doing my job or if it's my illness preventing me from doing it....

Just had my 2nd meeting with my boss and hr. They are trying to define if I'm ju...

Helliwelli12

•2 months ago

19 Replies

hip stiffness

I was finally diagnosed with PMR in July last year although I’d had all the symptoms for over 6 months. I was prescribed 20 mg prednisolone as a starting...

I was finally diagnosed with PMR in July last year although I’d had all the sym...

Nanatoo

•2 months ago

15 Replies

to reduce or not?

I was diagnosed with PMR and GCA in February last year and put on 60 mg prednisolone. I am now down to 12.5 mg and was supposed to reduce today, but this...

I was diagnosed with PMR and GCA in February last year and put on 60 mg predniso...

musicalJ

•2 months ago

16 Replies

Results

could someone explain these please ESR. 2mm/h (9.0-20.0). Outside ref range Borderline SCR 8.3 <5.0 outside ref range Satisfactory Thanks

could someone explain these please ESR. 2mm/h (9.0-20.0). Outside ref range Bo...

Suffererc

•2 months ago

7 Replies

Tapering

Ive had PMR for nearly 5 years and I’m currently on 4 mgs of prednisolone. I’ve been taking it at 4am but recently been waking up in a lot of pain …mostly...

Ive had PMR for nearly 5 years and I’m currently on 4 mgs of prednisolone. I’ve...

Magictherabbit

•2 months ago

2 Replies

Tapering

I’ve had PMR for nearly 5 years and currently on 4 mgs of prednisolone. I take it about 4 am when I wake but I’m now waking up in a lot of pain …especially...

I’ve had PMR for nearly 5 years and currently on 4 mgs of prednisolone. I take i...

Magictherabbit

•2 months ago

10 Replies

emotional on prednisone

I haven’t been on prednisone for years and I’ve had a brain haemorrhage in between so can’t remember how I felt but I’m on 20 mg at the moment and I’m feeling...

I haven’t been on prednisone for years and I’ve had a brain haemorrhage in betwe...

Numptybrain

•2 months ago

21 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

PMR or arthritis?

I’m having a GCA flare

A&E VIst

Early start - when to take Pred?

The effects of alcohol on polymyalgia/myotisis

Functional medicine

omega 3 Vitamin D3

Sweating

Chest pain

My recent journey in decreasing prednisone

PMR & GCA, 45 Years Ago

diet info please

BLOOD RESULTS - HELP PLEASE

Is anyone taking methotrexate?

More pred??

Oaktree5

Tyenne /Tocilizumab

PMR & Cellulitis

PMR & Cellulitis

Interaction between aspirin and pred.

enteric coated prednisolone

Prednisolone 0.5mg

More Challenges to Overcome!

Gca hr review

hip stiffness

to reduce or not?

Results

Tapering

Tapering

emotional on prednisone

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