lower dose prednisone

[Numptybrain]

Update

Took a call from respiratory nurse an hour ago. My respiratory consultant and rheumatologist have had a discussion and decided to keep me on 10 mg of prednisone until I see rheumatologist in June instead of stopping in may as planned as it’s obviously working providing this was a connective tissue disease causing inflammation and effusion’s, it’s been a very long road for me and I finally feel I getting somewhere although I am struggling with side effects from steroids, I’ve ordered some magnesium to see what f that helps.

Wendy xx

[PMRpro Ambassador]

Well it is a start!

[Numptybrain in reply to PMRpro]

Thank goodness, I’ve hit a snag I’m getting pain both sides of temples starts like pressure but then builds to a thumping pain like you’re heartbeat going off in them and my eyes get blurry again, I’ve rang rheumy nurses today as at first I thought it was random but it’s been every night now since I’ve dropped to 15mg . Nurse has just rang after speaking to dr and they want bloods checking so hopefully I’ll find out what’s causing it. I take 50mg topiramate already to stop migraines caused by a subarachnoid haemorrhage in 2016 so I can’t understand why they aren’t stopping this.

[Numptybrain in reply to PMRpro]

I’ve just received letter from rheumatologist, he wants to start me on immunosuppressants if prednisone is working for Serositis. Well he now knows they are working as he’s had conversations with my respiratory consultant so I’m assuming I’m staying in prednisone until 8/5 10mg then starting whatever immunosuppressant. Does that mean I’ll stop prednisone?

Thanks

Wendy x

[PMRpro Ambassador in reply to Numptybrain]

Depends - most immunosuppressants don't deal with PMR entirely for most patients. Some find no effect, some find some effect, some get a great result. How much less pred you manage with is a wait and see quantity.

[Numptybrain in reply to PMRpro]

It’s for Serositis apparently