giant Cell

[LRevell]

I’m off Prednisone and on Actemra only now. I inject it once a week. Lately been feeling a little light headed and woozy. My blood pressure is fine!

[DorsetLady PMRGCAuk volunteer]

Might be adrenals- it’s a sign of them struggling - even after finishing Pred that can take up to a year to be back to full function.

Do you notice it at any particular time - after activity or stress..

[LRevell in reply to DorsetLady]

Pretty much all day yesterday and today better. It comes and goes. I’m seeing my Rhum next week and will have him check my adrenals.

Thank you for your input!

[PMRpro Ambassador in reply to LRevell]

Does it happen more after a stressful day? I agree with DL - adrenals still catching up. If you don't feel really unwell then they are obviously functioning to some extent but not necessarily reliably. Even testing can't so more than a picture - as opposed to a video!