Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,756 members • 39,023 posts

All posts for April 2024

PMR flare advice needed

I have messed up with dealing with a recent flare and would love your advice on where to go from here. I was stuck at 11mg Prednisolone for many months and...

I have messed up with dealing with a recent flare and would love your advice on ...

Oh-my

•3 months ago

8 Replies

Dose timing for non-pain symptoms?

I have been on 5mg pred for about five months and my symptoms are fatigue, some head spinning/ balance issues and mood swings, but no pain. I normally take the...

I have been on 5mg pred for about five months and my symptoms are fatigue, some ...

kangaroojohn

•3 months ago

3 Replies

question

Does anyone get a pulsating sensation in their head on prednisone? I keep getting like my heartbeat really loud thumping in my head , sometimes it causes a...

Does anyone get a pulsating sensation in their head on prednisone? I keep gettin...

Numptybrain

•3 months ago

27 Replies

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Holiday!!

Hi everyone, I took advice from my lovely fellow sufferers.....Upped my pred from 8mg to 10mg.. Currently in Spain on hols....its pouring down but I'm happy......

Hi everyone, I took advice from my lovely fellow sufferers.....Upped my pred fro...

Tescohednesford

•3 months ago

16 Replies

5 week taper

I am about to embark upon the 5 week taper plan and would just like to clarify something. When I have reached the fifth week and have taken the new dose all...

I am about to embark upon the 5 week taper plan and would just like to clarify s...

Noni71

•3 months ago

2 Replies

nausea and bloating

Good evening just wondering if anybody started to feel nausea , bloating and burping after almost 2years on Prednisolone !! I have been on 5mg for 10 months...

Good evening just wondering if anybody started to feel nausea , bloating and bur...

5goFlotilla

•3 months ago

6 Replies

research opportunity

Apologies if this is a duplicate. This came from The Vasculitis charity. I was impressed that PMR was included. I have done the interview hour on Teams. Very...

Apologies if this is a duplicate. This came from The Vasculitis charity. I was ...

Nightingales

•3 months ago

1 Reply

GCA Heart Issues

Hi, I was hospitalized with severe pain on my right side temporal artery and diagnosed with GCA. I am currently taking 50 mg prednisone and will taper to 40...

Hi, I was hospitalized with severe pain on my right side temporal artery and dia...

Moaningxcat

•3 months ago

28 Replies

thank you

Hello, I am new here. I am in the test phase with 20 mg Pred. My GP thinks it's PMR, my orthopaedist thinks it's frozen shoulder. Now after 5 days the pain...

Hello, I am new here. I am in the test phase with 20 mg Pred. My GP thinks it'...

Swizzly

•3 months ago

13 Replies

update on 4/26 PMR pain

After having all that pain yesterday, I took the wise advice of members of this forum. I woke up at 2:30 am, took 10 mg of pred, and .25 mg of Xanax , and went...

After having all that pain yesterday, I took the wise advice of members of this ...

Aqua47

•3 months ago

5 Replies

Recieved rheumatologist letter and conclusion

Hi all, here is an update. I received my Rheumatologist letter and the conclusion was Fibromyalgia as expected. He is without any doubt that i have fibro and...

Hi all, here is an update. I received my Rheumatologist letter and the conclusi...

Cooper02

•3 months ago

31 Replies

Knee Replacement Yesterday

Thanks to those of you who wished me well yesterday. I had full knee replacement surgery yesterday afternoon. On the advice of the surgical team I had my...

Thanks to those of you who wished me well yesterday. I had full knee replacemen...

Janet57

•3 months ago

34 Replies

2 questions

I haven't recd a notice fr the Health Unhlocked PMR forum in months. I see I am still registered tho and my preferences recorded. Any idea why? Has...

I haven't recd a notice fr the Health Unhlocked PMR forum in months. I see I ...

bonmaine

•3 months ago

9 Replies

From Prednisone to Morphine

I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s...

I was wondering if anyone had been offered Morphine as an alternative to Prednis...

Chelseadog

•3 months ago

24 Replies

Coopersmummy7

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long...

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and f...

Angelsmummy

•3 months ago

82 Replies

Is this normal?

For the last few days, when I get up in the morning, I have more pain on my right side(shoulder, arm and back of my leg). It seems to be getting worse, today I...

For the last few days, when I get up in the morning, I have more pain on my righ...

Aqua47

•3 months ago

12 Replies

Flare Up

Feeling frustrated at the moment, thought I was making progress but pain in arms and legs as increased in last few weeks. GP consult yesterday and advised to...

Feeling frustrated at the moment, thought I was making progress but pain in arms...

lynda1955

•3 months ago

4 Replies

Mild Adrenal response?

On Saturday I was feeling cold, I mean seriously cold, shivering, feet freezing, walking around with fur slippers and thick cardigan. It was a coldish day,...

On Saturday I was feeling cold, I mean seriously cold, shivering, feet freezing,...

Sophiestree

•3 months ago

8 Replies

Hi, just wanted to introduce myself and say hello

Hi, having been diagnosed with PMR in March and joining this fantastic forum around the same time, I’ve finally got round to completing my profile! I am an...

Hi, having been diagnosed with PMR in March and joining this fantastic forum aro...

GRB8

•3 months ago

28 Replies

Resuming tapering after a sick day week

Hello, and thank you for your advice. I am nearly at the end of a week on antibiotics for cellulitis during which I increased pred from 3mg to 8. The PMR has...

Hello, and thank you for your advice. I am nearly at the end of a week on antib...

calibriel

•3 months ago

2 Replies

Trip to the Er/ED

A day or 2 ago, I wrote in about experiencing vertigo. I tried the Epley Maneuver on myself, and have not had any more episodes of such extreme, dramatic...

A day or 2 ago, I wrote in about experiencing vertigo. I tried the Epley Maneuve...

Lenore58

•3 months ago

7 Replies

Had a blood test this morning - email results this evening!

I ask my Dr last week for a blood test to see what my CRP is. I have been struggling overt the last 2 weeks. Pain and fatigue on many days. My CRP...

I ask my Dr last week for a blood test to see what my CRP is. I have been strug...

IdasMum

•3 months ago

6 Replies

1978? - 2023?

If you're having a bad day, just thought this might cheer you up a bit. I think we can all relate to a couple of these! 😄

If you're having a bad day, just thought this might cheer you up a bit. I think ...

Kendrew

•3 months ago

25 Replies

Incidence of Large Vessel Vasculitis in late diagnosis of PMR

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for them but I have to admit to feeling a degree of envy. My diagnosis arrived...

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for t...

123-go

•3 months ago

42 Replies

Possible new treatments for PMR and GCA?

Thanks for the info on your blog. I’ve just rejoined as CANUKUS. I’ve had GCA and PMR for about 11 years now. All I’m taking that’s directly related to...

Thanks for the info on your blog. I’ve just rejoined as CANUKUS. I’ve had GCA...

Canuk

•3 months ago

2 Replies

Osteopenia treatment

I had had a DEXA scan recently . My last scan was 2 years ago. The scan has shown significant osteopenia with a T-score of -2.4 in the femoral neck. The...

I had had a DEXA scan recently . My last scan was 2 years ago. The scan has sho...

Belfastman

•3 months ago

15 Replies

NEED for SURGERY

presently on daily 12mg preds for PMR; osteoporosis; severe lumbar scoliosis and bone on bone diagnosis that cannot be treated with facet joint injections. Has...

presently on daily 12mg preds for PMR; osteoporosis; severe lumbar scoliosis and...

Bennijax

•3 months ago

7 Replies

GCA, tinnitus etc

has anyone been diagnosed with pulsatile tinnitus, to do with GCA. I have buzzing in one ear 24/7 which comes & goes with vibrations in head. I have now...

has anyone been diagnosed with pulsatile tinnitus, to do with GCA. I have buzz...

CavalierKC3

•3 months ago

33 Replies

Steroid tapering

Hi , can l just ask the collective wisdom of this forum about tapering please? When l was put on Pred 15mgs Gp said l was to take that dose for 4 weeks then...

Hi , can l just ask the collective wisdom of this forum about tapering please? ...

bde987

•3 months ago

4 Replies

Vaccinations and tapering

Hello everyone, hoping for advice from you knowledgeable, lovely people. I’m on 15 mgs of Prednisolone, 20mgs am and 5mgs pm, tapering by 1mg every 2 weeks if...

Hello everyone, hoping for advice from you knowledgeable, lovely people. I’m on ...

Tribie

•3 months ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

PMR flare advice needed

Dose timing for non-pain symptoms?

question

Holiday!!

5 week taper

nausea and bloating

research opportunity

GCA Heart Issues

thank you

update on 4/26 PMR pain

Recieved rheumatologist letter and conclusion

Knee Replacement Yesterday

2 questions

From Prednisone to Morphine

Coopersmummy7

Is this normal?

Flare Up

Mild Adrenal response?

Hi, just wanted to introduce myself and say hello

Resuming tapering after a sick day week

Trip to the Er/ED

Had a blood test this morning - email results this evening!

1978? - 2023?

Incidence of Large Vessel Vasculitis in late diagnosis of PMR

Possible new treatments for PMR and GCA?

Osteopenia treatment

NEED for SURGERY

GCA, tinnitus etc

Steroid tapering

Vaccinations and tapering

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