Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for April 2024

ASPIN WOUNDER DRUG

I have taken aspirin dayly since I was about 40 I am now 86 in October if I forget to take it I quickly knew. Without it I felt quite lethargic But my...

I have taken aspirin dayly since I was about 40 I am now 86 in October if I forg...

Ronzy

•5 months ago

9 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•5 months ago

67 Replies

Please vote for us to win £5,000!

Hi everyone, there is a limited-time draw running for us to be in with a chance of winning £5,000. Please help us and vote for us by clicking on the link...

Hi everyone, there is a limited-time draw running for us to be in with a chance ...

Fran_Benson

Partner•5 months ago

31 Replies

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Gearoid

Have been told since January i might have GCA. Have been on Pred from 40ml now down to 10ml. I have had numerous tests all coming back negative. To date i...

Have been told since January i might have GCA. Have been on Pred from 40ml now ...

Rivocco

•5 months ago

12 Replies

Slapped Cheek Disease

My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of Pred a day for PMR. Is it ok to be in contact with her. Thank you. Jenny

My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of...

Attic

•5 months ago

8 Replies

Update

So started off with bloods showing CRP39 and ESR 68.Went onto 15mg of prednisalone and got immediate effect with tablets. I must say, i was not affected as...

So started off with bloods showing CRP39 and ESR 68.Went onto 15mg of prednisalo...

pastamaid

•5 months ago

8 Replies

prednisone

It’s been years since I’ve been on prednisone and then I was on dosages of 40/30mg per day for brittle asthma but now it’s for pleural/pericardial effusion and...

It’s been years since I’ve been on prednisone and then I was on dosages of 40/30...

Numptybrain

•5 months ago

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Dexa Scan and my Pain - Hello :)

Hello everyone :) I've just had a Dexa scan and the lady operating the machinery said at first glance it all looks good which was lovely to hear.. last time I...

Hello everyone :) I've just had a Dexa scan and the lady operating the machiner...

Hidden

•5 months ago

16 Replies

Sugar substitute

Trying to follow anti inflammatory diet. Can I substitute sweetener for sugar occasionally

Trying to follow anti inflammatory diet. Can I substitute sweetener for sugar oc...

Shires123

•5 months ago

11 Replies

PMR update, flare, cholesterol, pre diabetes, neck, DEXA etc

Follow up to previous post a few weeks back. Many thanks for helpful comments and support on previous post. Just to recap, when I posted last, I was...

Follow up to previous post a few weeks back. Many thanks for helpful comments a...

Gimme

•5 months ago

8 Replies

Blagging a scarce Covid booster

Recent posts have asked questions about Covid booster eligibility for those taking prednisolone and being immuno-suppressed, potentially.I flippantly replied...

Recent posts have asked questions about Covid booster eligibility for those taki...

OldPenny

•5 months ago

12 Replies

Short dose increase?

On 25mg mild symptums. Weekend activity coming up. Thinking of 5mg uplift for couple of days to get through. Any prroblem?

On 25mg mild symptums. Weekend activity coming up. Thinking of 5mg uplift for ...

tonyevans48

•5 months ago

8 Replies

Egg allergy

Hi. I had pmr for 2 and half years but have been clear for 11 months now thanks to all on the forum and Dorset Lady for my slow taper programme. I think i...

Hi. I had pmr for 2 and half years but have been clear for 11 months now thanks...

Cosmos22Marigold

•5 months ago

2 Replies

Disappointed and worried

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year...

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went thr...

Cooper02

•5 months ago

64 Replies

The Flare That Keeps on Giving

I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs...

I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoim...

Donna5658

•5 months ago

20 Replies

restless legs

Hi all, Another disturbed night - restless legs driving me insane. I get a horrible tingling sensation in my legs and cannot keep them still. I’m not...

Hi all, Another disturbed night - restless legs driving me insane. I get a horr...

artisam

•5 months ago

26 Replies

Good luck to our runners in the London Marathon today!

Wishing our runners a fabulous day today in the London Marathon raising valuable funds and awareness for PMR and GCA. A big thank you to all the sponsors...

Wishing our runners a fabulous day today in the London Marathon raising valuable...

Fran_Benson

Partner•5 months ago

5 Replies

Cramps

Has anyone had trouble with leg cramps, especially at night? I am getting bad cramp in both ankle joints & reaching up the shin especially on right leg. It is...

Has anyone had trouble with leg cramps, especially at night? I am getting bad cr...

Claremont2023

•5 months ago

36 Replies

Thoughts please on dissolving Prednisolone in water to drink instead of swallowing whole.

I only spotted this yesterday on the information in the Prednisolone tablets. In "Method of administration" section it says: "The tablets can be swallowed...

I only spotted this yesterday on the information in the Prednisolone tablets. In...

Positive__

•5 months ago

57 Replies

Thank you! Increase to 20mg Prednisolone.

Thank you so much for all the amazing help and advice you have all given me. 🙂 You are all wonderful! In my latest GP phone appointment because of the...

Thank you so much for all the amazing help and advice you have all given me. 🙂 ...

Positive__

•5 months ago

13 Replies

Should I increase pred because I have a cold? I am totally wiped out and the weakness in my arms and legs is becoming more noticeable.

I was diagnosed in January 2024 and the 15mg worked quickly on my symptoms. I have been decreasing according to the plan but the fatigue has been the worst...

I was diagnosed in January 2024 and the 15mg worked quickly on my symptoms. I ha...

Fifebornlass

•5 months ago

3 Replies

Continued discomfort

Hi everyone.I was diagnosed with PMR beginning of Feb and was on 20 mg of pred with my not very sympathetic Dr telling me to drop by 5 mg every 2 weeks....when...

Hi everyone.I was diagnosed with PMR beginning of Feb and was on 20 mg of pred w...

Tescohednesford

•5 months ago

16 Replies

Possible Adrenal Insuffiency

Some advice please. I’ve been on prednisolone for PMR since 2014. I’ve been stuck on 5mg for maybe six years. I now have two compression fractures in my spine...

Some advice please. I’ve been on prednisolone for PMR since 2014. I’ve been stuc...

susanspurs

•5 months ago

16 Replies

How much should I increase Pred?

I've had PMR since 2016, it's been a rough ride but I've been on 0.50 mg Pred since March of this year. About a week ago I got pain in my knees and shoulders...

I've had PMR since 2016, it's been a rough ride but I've been on 0.50 mg Pred si...

kulina

•5 months ago

25 Replies

Pred and fluid retention

Still on the PMR journey which started 2015, 2017 steroid treatment started. Bit bumpy and set back in Nov. 2023 after covid booster. Was down to 5mg but huge...

Still on the PMR journey which started 2015, 2017 steroid treatment started. Bit...

Hulotsholiday

•5 months ago

11 Replies

ZOE osteoporosis

Apologies if this has posted already. This as a good podcast for those of us taking vitamin D/calcium and with osteoporosis....

Apologies if this has posted already. This as a good podcast for those of us ...

Pangolin43

•5 months ago

17 Replies

Pes Anserine Bursitis - steroid injection offered.

On Thursday I had an appointment with a rheumatologist who had previously been quite impatient and dismissive of me. I made up my mind to give him the briefest...

On Thursday I had an appointment with a rheumatologist who had previously been q...

Sukydee

•5 months ago

4 Replies

fatigue

sorry, I meant I can medicate the pain.

Antirrhinum

•5 months ago

1 Reply

fatigue

Hello, all, I’ve only been diagnosed recently. I can medicate the patient n but how do you deal with the fatigue? It comes on quite suddenly. Feels as if my...

Hello, all, I’ve only been diagnosed recently. I can medicate the patient n but ...

Antirrhinum

•5 months ago

31 Replies

Persistent UTIs - new hope for management with a vaccine development

Many of us end up with problems with repeated UTIs when on pred and I thought this was likely to be of interest and something to bear in mind to be looked out...

Many of us end up with problems with repeated UTIs when on pred and I thought th...

PMRpro

Ambassador•5 months ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

ASPIN WOUNDER DRUG

Prednisolone and diabetes / high bp worried sick about all the side effects

Please vote for us to win £5,000!

Gearoid

Slapped Cheek Disease

Update

prednisone

Dexa Scan and my Pain - Hello :)

Sugar substitute

PMR update, flare, cholesterol, pre diabetes, neck, DEXA etc

Blagging a scarce Covid booster

Short dose increase?

Egg allergy

Disappointed and worried

The Flare That Keeps on Giving

restless legs

Good luck to our runners in the London Marathon today!

Cramps

Thoughts please on dissolving Prednisolone in water to drink instead of swallowing whole.

Thank you! Increase to 20mg Prednisolone.

Should I increase pred because I have a cold? I am totally wiped out and the weakness in my arms and legs is becoming more noticeable.

Continued discomfort

Possible Adrenal Insuffiency

How much should I increase Pred?

Pred and fluid retention

ZOE osteoporosis

Pes Anserine Bursitis - steroid injection offered.

fatigue

fatigue

Persistent UTIs - new hope for management with a vaccine development

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