After yesterday's discussion, I heard from my friend last night that her friend who's had pmr for just over a year, had just come off her pred. She'd started on 15mg, been totally fine and continued to play golf, travelling abroad etc and not a twinge. However, on going down to zero obviously far too fast, pmr has returned with a vengeance and she's back to where she started on 15mg. And again pred has worked it's magic and she's back fine. What bad advice she must have been receiving as maybe just going up to 5mg might have worked.
Another pred cautionary tale: After yesterday's... - PMRGCAuk
Another pred cautionary tale
Written by
diana1998
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4 Replies
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PMRproAmbassador
A lot of doctors just don't understand that and it is a common reason for patients being on too much pred for too long.
Yes indeed. When I was reduced far too quickly by l rheumie to 13mg and had a horrendous flare in my spine, I took an extra 2mg off my own bat as I couldn't move and pain subsided very quickly. I then reduced extremely cautiously staying on each drop for 4-6 weeks. If the Dr had put me back on my original dose, I'd have been back to 30mg!
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