Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for May 2023

pain free in hotter climate !! ? Cause

Hello everyone I was diagnosed with PMR in September last year . Was on 15 mg pred, now down to 8mg . My question is … I am currently on holiday in Spain ,...

Hello everyone I was diagnosed with PMR in September last year . Was on 15 mg ...

Bluepin

•1 year ago

5 Replies

PMR turns into 3 things, per my Rheumo

I had PMR and on Predisone for 1 1/2 years, and off of it for 5 months. I have bad pain in all joints/muscles and much stiffness. Inflammatory blood tests...

I had PMR and on Predisone for 1 1/2 years, and off of it for 5 months. I have...

kp60

•1 year ago

13 Replies

CRP and ESR

I am in US and on Actemra 24 weeks and prednisone 12.5 and having right temple pain and right eye pain ...started at 60 mg prednisone in August-Sept 2022...

I am in US and on Actemra 24 weeks and prednisone 12.5 and having right temple p...

Joseph14612

•1 year ago

38 Replies

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Strange symptoms a year after 3rd Pfizer shot

I'm new to this site, so please excuse me if there are already similar questions to mine! I'm having PMR type symptoms and have today started a course of...

I'm new to this site, so please excuse me if there are already similar questions...

HarmonyGranny

•1 year ago

4 Replies

teeth again!

I posted previously about having 4 loose teeth . My new dentist wants to do a deep clean and root planing due to periodontal disease. I am concerned about the...

I posted previously about having 4 loose teeth . My new dentist wants to do a d...

Gardening2811

•1 year ago

11 Replies

no msg inbox

tried all suggestions and still unable to get any new in my email inbox Please help

tried all suggestions and still unable to get any new in my email inbox Please ...

2013mayo

•1 year ago

7 Replies

No pain in hips - why?

So there I was variously on the floor, in a chair, in a hospital bed and the key thing is my brain is saying cheerfully to my lower half, "You're going to...

So there I was variously on the floor, in a chair, in a hospital bed and the key...

Mayadill

•1 year ago

9 Replies

Cbd oils

Do anyone on here take CBD oil or gummies for aches and pains due to Pmr?

Petertaffy

•1 year ago

2 Replies

Breakfast at A&E

We got stuck in A&E for 16 hours this week with my husband in severe pain on RHS of his back. The night passed and morning came, with bad news about waiting...

We got stuck in A&E for 16 hours this week with my husband in severe pain on RHS...

Booklist

•1 year ago

3 Replies

Best way to take Prednisolone

Have different brand of Prednisolone this week so read the information leaflet and it says to dissolve the tablets in large glass of water and wondered if that...

Have different brand of Prednisolone this week so read the information leaflet a...

Body_bonkers

•1 year ago

8 Replies

Self inflicted back pain. Nurofen or not?

Well it seems I don't learn. After what we thought was 'a not usual flare' earlier in year had to go up to 15mg...Now on 11mg and starting to function again...

Well it seems I don't learn. After what we thought was 'a not usual flare' earli...

Ebiker

•1 year ago

5 Replies

Teeth and prednisolone

Has anyone had problems with teeth and jaw pain when on prednisolone?Is so what advice can you give. My teeth have been no bother the last ten years. They are...

Has anyone had problems with teeth and jaw pain when on prednisolone?Is so what ...

Freya32

•1 year ago

27 Replies

Here I go again! Withdrawal or flare?

Hi everyone, I think I know the answer to my own question but just need the affirmation of people whom I trust. I started a Pred reduction just under a...

Hi everyone, I think I know the answer to my own question but just need the affi...

Tiggy70

•1 year ago

8 Replies

Confusion over PMR flare or injury

I was diagnosed with PMR December 2022 and GCA in January . Started on 20 mg prednisone.for suspected PMR with no improvement in pain until referred to an...

I was diagnosed with PMR December 2022 and GCA in January . Started on 20 mg pr...

4846td

•1 year ago

22 Replies

what do we do when being physically sick

Morning all I’ve been vomiting all night and have been at a bit of a loss as to how to take my pred and mx. I ate a biscuit and took the tablets and just hope...

Morning all I’ve been vomiting all night and have been at a bit of a loss as to...

Suet3942

•1 year ago

9 Replies

GCA/PMR research

https://www.youtube.com/watch?v=S44Hz2-I-T4 I posted yesterday and messed up the link. I’m not very technical and apologise. I hope you can get this link...

https://www.youtube.com/watch?v=S44Hz2-I-T4 I posted yesterday and messed up th...

lennysmummy

•1 year ago

4 Replies

Gut issues from Vitamin D3 Ampoule Uvedose?

Hi all, Replying to everyone who has been helping me about the 100,000 Uvedose of Vitamin D3. Seems it is popular in France. My level in the US is usually...

Hi all, Replying to everyone who has been helping me about the 100,000 Uvedose ...

bluegirl7

•1 year ago

13 Replies

tapering

got a text from my doctor saying my inflamation and bone denseity test were normal and advised to taper 1mg a month but ive just dropped from 5mg to 4.5 mg...

got a text from my doctor saying my inflamation and bone denseity test were norm...

deeperpurple

•1 year ago

23 Replies

n box

hi Why am I not getting any inbox post? Can anyone help please

2013mayo

•1 year ago

12 Replies

GCA Hair Loss & Skin Changes

Hi All Sep 2022 was admitted to hospital suffering from severe headache, facial swelling &jaw movement difficulty. Diagnosed with GCA ( Right Temporal artery...

Hi All Sep 2022 was admitted to hospital suffering from severe headache, facial...

driveway77

•1 year ago

27 Replies

GCA INTERESTING READING

https://www.facebook.com/groups/giantcellarteritissupportgroup/permalink/5407931365976185

https://www.facebook.com/groups/giantcellarteritissupportgroup/permalink/5407931...

lennysmummy

•1 year ago

5 Replies

My 'garden'

The verge opposite my flat. Better than a garden for me because I don't have to do anything! Just watch the locals going about their business, many species...

The verge opposite my flat. Better than a garden for me because I don't have to...

Mayadill

•1 year ago

11 Replies

Increasing dose, but how much?

Hi. 68 year old male, diagnosed November 2019. I've reduced to 2.5mg per day and have been stuck on it for 6 months. I think I need to increase the dose a...

Hi. 68 year old male, diagnosed November 2019. I've reduced to 2.5mg per day a...

Utgorn

•1 year ago

15 Replies

Thinking of our conversation on pred level and how to handle stressful moments to keep adrenal drama at bay....

So things for me and PMR and pred have not gone the way a lot of folks have. I read about when you take the pred in the beginning most have amazing relief...

So things for me and PMR and pred have not gone the way a lot of folks have. I ...

Wallysma

•1 year ago

8 Replies

Covid Vaccination

I'm booked to have my next booster vaccination tomorrow. Feeling anxious this time, as I now have PMR affecting my neck, shoulders and arms. Would be...

I'm booked to have my next booster vaccination tomorrow. Feeling anxious this t...

jsc50

•1 year ago

85 Replies

Just showing off now

This is past it’s best….like me!….on opposite side of garden to the Rhododendrons….

This is past it’s best….like me!….on opposite side of garden to the Rhododendron...

Longtimer

•1 year ago

36 Replies

Uvedose Vitamin D3 100,000 - anyone ever taken it?

Hello All, I have two questions: 1. This is for PMR Pro who I believe lives in Northeastern Italy? The floods seem horrendous and I am wondering if you are...

Hello All, I have two questions: 1. This is for PMR Pro who I believe lives in...

bluegirl7

•1 year ago

19 Replies

lansoprazole withdrawal discomfort

I’m down to 3.5 mg of pred having tapered down from 40mg 2.5 years ago with the usual ups and downs. Visited Rheumy a few weeks ago who said it was ok to...

I’m down to 3.5 mg of pred having tapered down from 40mg 2.5 years ago with th...

Gettingbetter1

•1 year ago

19 Replies

GPs and Actemra

Can CGPs prescribe Actemra? What are your experiences? I’m in the US, and have had 3 bad experiences with rheumatologists. One good one who...

Can CGPs prescribe Actemra? What are your experiences? I’m in the ...

Mstiles

•1 year ago

22 Replies

I would appreciate your thoughts on what is happening to me right now and the best way to get help or do I just plough through.

Back story of LVV and having had a second PET CT at the end of Nov 2022 I have been told I no longer have LVV, albeit I had gone as high as 10mg plus prior to...

Back story of LVV and having had a second PET CT at the end of Nov 2022 I have b...

Sophiestree

•1 year ago

27 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2023

pain free in hotter climate !! ? Cause

PMR turns into 3 things, per my Rheumo

CRP and ESR

Strange symptoms a year after 3rd Pfizer shot

teeth again!

no msg inbox

No pain in hips - why?

Cbd oils

Breakfast at A&E

Best way to take Prednisolone

Self inflicted back pain. Nurofen or not?

Teeth and prednisolone

Here I go again! Withdrawal or flare?

Confusion over PMR flare or injury

what do we do when being physically sick

GCA/PMR research

Gut issues from Vitamin D3 Ampoule Uvedose?

tapering

n box

GCA Hair Loss & Skin Changes

GCA INTERESTING READING

My 'garden'

Increasing dose, but how much?

Thinking of our conversation on pred level and how to handle stressful moments to keep adrenal drama at bay....

Covid Vaccination

Just showing off now

Uvedose Vitamin D3 100,000 - anyone ever taken it?

lansoprazole withdrawal discomfort

GPs and Actemra

I would appreciate your thoughts on what is happening to me right now and the best way to get help or do I just plough through.

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