Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2023

Posted to Pain Forum, don,t see now

well I thought my recent story would see in email, but no, so can,t find, and of course no input, can I tsf my post from Pain form to the PMR forum, ?

well I thought my recent story would see in email, but no, so can,t find, and of...

arvine

•1 year ago

3 Replies

My PMR Awareness T arrived yesterday

I got it from the place Sferios told us about It would have been nice to swell the coffers of PMRGCAUK - is there any chance of any merchandise? Anyhow I...

I got it from the place Sferios told us about It would have been nice to swell ...

Mayadill

•1 year ago

4 Replies

Update: Myofascial Pain Syndrome

I had posted (I believe to PMRPro) a few days ago about my symptoms with regard to trigger points or fascia issues in my back. My daughter went over my back...

I had posted (I believe to PMRPro) a few days ago about my symptoms with regard ...

Missus835

•1 year ago

9 Replies

Want to take advantage of all our features? Just log in!

flutters!

I had exactly the same but it stopped when I got on to a lower dose(I’m on 2mg now); no other effects and I feel fine

I had exactly the same but it stopped when I got on to a lower dose(I’m on 2mg n...

Calliope22

•1 year ago

1 Reply

Interesting article on lessons learned from Chronic Disease

This is a good story and in particular lessons learned by an MD with autoimmune diseases....

This is a good story and in particular lessons learned by an MD with autoimmune ...

PMR2011

•1 year ago

16 Replies

Bubonic plague and autoimmune disease

Fascinating item about how some Europeans had mutated genes which allowed them to survive the Black Death, which they passed on to their descendants, along...

Fascinating item about how some Europeans had mutated genes which allowed them t...

HeronNS

•1 year ago

9 Replies

Pred and Alendronic Acid

Hi everyone, I haven't been on here for quite a while. I have at last got down to 1mg of pred which 6 months ago I thought it would never happen. I stumbled...

Hi everyone, I haven't been on here for quite a while. I have at last got down ...

Smilie67

•1 year ago

4 Replies

Internal fluttering/racing

I'm down to 4.5 pred and have been getting extreme fluttering when sitting or lying down. Very difficult to describe and not sure where it is coming from....

I'm down to 4.5 pred and have been getting extreme fluttering when sitting or ly...

herdysheep

•1 year ago

36 Replies

Not receiving daily emails

I have not been receiving daily emails from HealthUnlocked/PMRGCAuk since the 23rd May. How can I resume their receipt? Thank you.

I have not been receiving daily emails from HealthUnlocked/PMRGCAuk since the 23...

Orangecakes

•1 year ago

20 Replies

Prolia Injections?

Hello all you lovely people! After 6 years on pred (currently on 10 mgs) my bones have objected (I had osteopenia even before I started). I am now...

Hello all you lovely people! After 6 years on pred (currently on 10 mgs) my bo...

Louisa1840

•1 year ago

49 Replies

Vitamin supplements

I'm working know making sure I take the right supplements and amount each d ay while on prednisone such as calcium D C turmeric zinc etc. Does anyone know...

I'm working know making sure I take the right supplements and amount each d ay ...

Seal49

•1 year ago

40 Replies

Seal49

I was diagnosed with PMR about 6 weeks ago. My Dr. First tried the 6 day pa c k of prednisone with stopped working when dose lowered. Sent me to a...

I was diagnosed with PMR about 6 weeks ago. My Dr. First tried the 6 day pa c k...

Seal49

•1 year ago

4 Replies

GCA and starting Actemra at 10 mg

Hello this is my second time with GCA. The first time (2017) I also had PMR and tapered prednisone over 4 years, very slowly. After almost a year off of...

Hello this is my second time with GCA. The first time (2017) I also had PMR an...

Pamk1949

•1 year ago

7 Replies

Not PMR but now diagnosed with Polymyositis?

After being diagnosed for 5 months with PMR and being on (& tapering) Prednisone, with further blood tests, my Rheumy has concluded that it isn't PMR at all....

After being diagnosed for 5 months with PMR and being on (& tapering) Prednisone...

musclesinflamed

•1 year ago

12 Replies

The final taper

I though an update on my taper may be useful to some people After 3 weeks of alternating 0.5 mg and 0 mg, I am starting to feel normal again. I held my nerve...

I though an update on my taper may be useful to some people After 3 weeks of al...

TheMoaningViolet

•1 year ago

14 Replies

D mannose

I think I saw a post which said it was okay to take D mannose with prednisone, adcal and the other things we take for PMR and GCA but I can’t find it. I have...

I think I saw a post which said it was okay to take D mannose with prednisone, a...

Smellydog9

•1 year ago

17 Replies

PMR remission maybe

As I mentioned in an earlier post after spending 30 days for each reduction tapering from 15mg-12.5mg -10mg, my nurse practitioner put me on a taper of 1 mg...

As I mentioned in an earlier post after spending 30 days for each reduction tap...

Mewy

•1 year ago

8 Replies

PrednisoneTaper

I have been exercising daily pretty much for 23 years on a treadmill or stationary bike, due to my 5 heart by-passes in 2000. Since getting PMR I can...

I have been exercising daily pretty much for 23 years on a treadmill or stationa...

RaisinBran

•1 year ago

16 Replies

Flare - what next please

On Pred since January 2020 very slow taper since 10mg (1/2 mg each 8 weeks). Got to 3.5mg (with a little difficulty at about 6mg). Was ready to reduce to 3mg...

On Pred since January 2020 very slow taper since 10mg (1/2 mg each 8 weeks). Got...

ChinaWuntoo

•1 year ago

10 Replies

After Rheumy appt...now where or nowhere?

I cannot put to pen the pain I am in this morning and over the last 2-3 weeks (but this particular morning, it's over the top. Several trips to the ER and a...

I cannot put to pen the pain I am in this morning and over the last 2-3 weeks (b...

Missus835

•1 year ago

34 Replies

Herpes Zoster vaccination OK for me?

Hello. I'm about to start Tocilizumab injections for GCA. I've been on high doses of steroids since February (60mg). Now down to 17.5 mg. I've been recommended...

Hello. I'm about to start Tocilizumab injections for GCA. I've been on high dose...

AliDeJ

•1 year ago

16 Replies

Bit shell shocked !!

it is thirteen years since I was diagnosed with gca. , and to be truthful I have never felt well but have been ok. I still take low dose pred. And...

it is thirteen years since I was diagnosed with gca. , and to be truthful I have...

5lupins

•1 year ago

45 Replies

Dizzy spells not magic

Hi, I am down to 2mg of prednisolone and have had some days of fatigue which I managed with rest. I seem to have reduced fairly swiftly from 20mg which I...

Hi, I am down to 2mg of prednisolone and have had some days of fatigue which I m...

Animalover65

•1 year ago

7 Replies

Live shingles vaccine or not?

I would appreciate your guidance on the importance of which kind of shingles vaccine to have, i.e. live or not? I am on medication for GCA, 5.5mg Prednisolone,...

I would appreciate your guidance on the importance of which kind of shingles vac...

Katiecatweazel

•1 year ago

22 Replies

Taper

Hi all I have been on 1mg for 8 weeks and feeling ok with no flare ups. What is the best way to taper from here in your experience? Stay on 1mg, 1/2 mg every...

Hi all I have been on 1mg for 8 weeks and feeling ok with no flare ups. What is...

Fredddie

•1 year ago

13 Replies

Increase in Foot Swelling During Tapering

I wanted to check in to see if others have had a problem similar to mine. I had some increased fluid retention and neuropathy in my feet when I first started...

I wanted to check in to see if others have had a problem similar to mine. I had ...

Donna5658

•1 year ago

3 Replies

Polymyalgia sufferer

struck down with Polymyalgia December 2022 and just wandering where the journey will take me after taking steroids 15mg for a month dr suggested reduction to...

struck down with Polymyalgia December 2022 and just wandering where the journey ...

Spinbikeoldman

•1 year ago

11 Replies

gum recession

Hi I have been on Pred for 5 years now and still tapering. Now tapered to 2 mg finally. Its been very up and down but seems to be getting better. my...

Hi I have been on Pred for 5 years now and still tapering. Now tapered to 2 mg ...

Dragonflys

•1 year ago

9 Replies

I did the Colour Obstacle Rush!!!

Well I did it - I completed the 5k Colour Obstacle Rush for PMRGCAuk!with 4 of my friends and family. I am so pleased I did it and completed every obstacle!!...

Well I did it - I completed the 5k Colour Obstacle Rush for PMRGCAuk!with 4 of m...

Janicecm

•1 year ago

39 Replies

Advice before telephone appointment

Hello everyone, I'd appreciate some thoughts on my present situation before I speak to my Medical Centre - no not a real live Dr, that dream happened BC...

Hello everyone, I'd appreciate some thoughts on my present situation before I ...

tempusfugi

•1 year ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2023

Posted to Pain Forum, don,t see now

My PMR Awareness T arrived yesterday

Update: Myofascial Pain Syndrome

flutters!

Interesting article on lessons learned from Chronic Disease

Bubonic plague and autoimmune disease

Pred and Alendronic Acid

Internal fluttering/racing

Not receiving daily emails

Prolia Injections?

Vitamin supplements

Seal49

GCA and starting Actemra at 10 mg

Not PMR but now diagnosed with Polymyositis?

The final taper

D mannose

PMR remission maybe

PrednisoneTaper

Flare - what next please

After Rheumy appt...now where or nowhere?

Herpes Zoster vaccination OK for me?

Bit shell shocked !!

Dizzy spells not magic

Live shingles vaccine or not?

Taper

Increase in Foot Swelling During Tapering

Polymyalgia sufferer

gum recession

I did the Colour Obstacle Rush!!!

Advice before telephone appointment

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