Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for May 2023

Two free webinars in PMRGCAuk Week

We are hosting two free webinars for PMRGCAuk Week in June and all are welcome. On 6th June: the Joint Pain Prorgramme at Nuffield Health which is a free...

We are hosting two free webinars for PMRGCAuk Week in June and all are welcome. ...

Fran_Benson

Partner•1 year ago

3 Replies

hypothyroidism

Just diagnosed with subclinical hypothyroidism, probably from the prednisone. Anybody else have that? How do you manage it? What sort of symptoms do you...

Just diagnosed with subclinical hypothyroidism, probably from the prednisone. A...

winfong

•1 year ago

14 Replies

Itchy, watery eyes after mowing

Hi. I'm a GCA patient, diagnosed in AUG 22. I was started on 60 MG PRED and have weaned down to 15 MG at present. I was also a PMR patient several years...

Hi. I'm a GCA patient, diagnosed in AUG 22. I was started on 60 MG PRED and ha...

montebello

•1 year ago

5 Replies

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Neck and shoulder pain

Good Morning. My journey with Prednisolone, has been a ‘yo-yo’ experience, but eventually reaching zero after two years, although the resulting symptoms...

Good Morning. My journey with Prednisolone, has been a ‘yo-yo’ experience, but e...

JaiSea

•1 year ago

2 Replies

Does Lansaprazole irritate the stomach

I am trying to work out whether or not Lansaprazole is upsetting my tummy/digestive system. I have been taking Pred fro three years now, getting down from 15mg...

I am trying to work out whether or not Lansaprazole is upsetting my tummy/digest...

marionofnorwich

•1 year ago

13 Replies

Rheumy says reduce....

Hi Everyone...Rheumy phone call today. Recounted the symptoms I have been having whilst reducing on DSNS, going 1/2 mg at a time over 4 weeks. He said...

Hi Everyone...Rheumy phone call today. Recounted the symptoms I have been having...

Temoral

•1 year ago

20 Replies

Does this sound like adrenals?

Hello all I reduced from 9mg to 8.5mg pred 4 weeks ago. For the last 2 weeks I have been exhausted with some stiffness, back collarbone, arms, hips, hands....

Hello all I reduced from 9mg to 8.5mg pred 4 weeks ago. For the last 2 weeks ...

Saffron23

•1 year ago

6 Replies

tapered too fast

My 69 yr old husband has had PMR for about four years. We got down to 10mg Prednisone by tapering .25mg every two weeks. When I got to 10mg he was feeling ok...

My 69 yr old husband has had PMR for about four years. We got down to 10mg Predn...

Utaker

•1 year ago

3 Replies

diarrhea and pmr

just had a rotten 24 hours with diarrhea and dry heaves. Should I report this episode to my GP?

just had a rotten 24 hours with diarrhea and dry heaves. Should I report this e...

FabricArt

•1 year ago

3 Replies

hip replacement surgery

PMR fall 2020. Tapering slowly. RA,prednisone, methotrexate, Simponi Aria & muscle spasms. Awaiting a hip replacement. Has anyone had one during this time of...

PMR fall 2020. Tapering slowly. RA,prednisone, methotrexate, Simponi Aria & musc...

Pass7

•1 year ago

7 Replies

waiting for the result of a 24 urine test as possible hypercalcaemia

I am waiting for the result of a 24 hour urine test. I have previously had above the normal range calcium tests. This has been going on for about a year. I’m...

I am waiting for the result of a 24 hour urine test. I have previously had above...

Elizabethjane7861

•1 year ago

1 Reply

Gluten free diet

Hi just wondering if anyone has tried a gluten free diet to reduce inflammation? I’m off steroids now so would like at least a change from low carbs . Just...

Hi just wondering if anyone has tried a gluten free diet to reduce inflammation?...

Devoid

•1 year ago

34 Replies

ok to taper from 10 back to half mg after 7 days due to slight flareup

I developed a bad pain at one side of my neck & no pain anywhere else. After a blood test it showed that my inflammation rate was raised. My GP said I should...

I developed a bad pain at one side of my neck & no pain anywhere else. After a ...

Grimsbytown

•1 year ago

10 Replies

Help please

Hello knowledgeable people. I need to pick your brains. A quick recap of my saga: A year ago I saw a Rheumatologist privately because my GP practice was...

Hello knowledgeable people. I need to pick your brains. A quick recap of my saga...

Countrykitten

•1 year ago

4 Replies

Starting again?

I have PMR diagnosed Jan 2023. My dosage started at 15 mg reducing so far to 12.5mg. Have just been on a holiday & managed to get E.coli quite badly. Was on a...

I have PMR diagnosed Jan 2023. My dosage started at 15 mg reducing so far to 12....

Claremont2023

•1 year ago

30 Replies

Trumpet Player

I have been diagnosed with GCA and am a Trumpet Player I haven't played for a month now and was wondering if it would effect me if I tried to play again Any...

I have been diagnosed with GCA and am a Trumpet Player I haven't played for a mo...

TrumpetPlayer

•1 year ago

4 Replies

Pesky Adrenals at work?

Hello all, for the last couple of weeks I've had horrid dizzy spells. It's not bp as I am checking that . Is this a sign of my adrenal glands trying to wake...

Hello all, for the last couple of weeks I've had horrid dizzy spells. It's not ...

Jigsawlass

•1 year ago

7 Replies

A cure for back pain?

I've had lower back pain, almost my tail, for a few weeks with some days better than others. I hate toilets but couldn't delay the repair to one mounted on a...

I've had lower back pain, almost my tail, for a few weeks with some days better ...

Flivoless

•1 year ago

13 Replies

Teeth sensitivity

can anyone recommend anything to stop the feeling of my nerves in my teeth feeling so uncomfortable. I have changed to Sensodyne toothpaste but it’s made no...

can anyone recommend anything to stop the feeling of my nerves in my teeth feeli...

lennysmummy

•1 year ago

42 Replies

My Story

H Everyone, I have been following along for some time, but have never really told my story. I’m in the U.S., in California, and belong to a few inline PMR...

H Everyone, I have been following along for some time, but have never really t...

Lenore58

•1 year ago

42 Replies

Lower back pain ?

Hi, recently started experiencing lower back pain. 2 1/2 to 3 months into my PMR diagnosis. On 15mg pred at the moment. Anyone else experienced it ?

Hi, recently started experiencing lower back pain. 2 1/2 to 3 months into my PMR...

Worthy10

•1 year ago

2 Replies

Upped my prednisone for knee inflammation and now I'm not sure how to reduce back to 1.5 mg.

You all have so much good advice on reducing prednisone which helped be to successfully reduce my dose to 1.5 mg, which I have been on for quite some time....

You all have so much good advice on reducing prednisone which helped be to succ...

jackswife

•1 year ago

4 Replies

Update on problems I had with my head last year

I have put what happened to me a year ago in a previous post, but can't find it at the moment. Anyway I will give a brief rundown of what happened. I got up...

I have put what happened to me a year ago in a previous post, but can't find it ...

Purplegloss

•1 year ago

4 Replies

Increase or Decrease

I am currently taking 13mg of steroids. I took your advice before my holiday last week to stay at 13, till after my holiday, I’ve been on 13 for about a month...

I am currently taking 13mg of steroids. I took your advice before my holiday la...

Carathedog

•1 year ago

15 Replies

Further COVID boosters

I suspect I know the answer to my question but the collective is usually very sensible To date I have had 4 COVID jabs, the system is quite persistent in...

I suspect I know the answer to my question but the collective is usually very s...

Billiebobdog

•1 year ago

22 Replies

Alendronic Acid taken with bottled mineral water by mistake. Should I be worried? Should I take it again tomorrow with tap water? Any advice

I realised too late and am now concerned about it. I’m currently on holiday and always drink bottled water while away but I remembered that the instructions...

I realised too late and am now concerned about it. I’m currently on holiday and ...

PipandDots

•1 year ago

28 Replies

Fever

Does anyone else experience intermittent fevers? I’ve no other symptoms of illness , a cough, sore throat or cold, just severe fatigue. The fever lasts on and...

Does anyone else experience intermittent fevers? I’ve no other symptoms of illn...

Croquet7

•1 year ago

5 Replies

Newswire Spring 2023 - my thoughts

I just finally got round to reading this and am left feeling more inspired and positive on the whole. There is still a long way to go and so much to learn...

I just finally got round to reading this and am left feeling more inspired and p...

tangocharlie

•1 year ago

15 Replies

too much going on - how much to taper after last flare?

Hallo all you wonderful people. About a month ago I had a significant flare of PMR - either due to covid, or to preparing to go to our daughter in Vancouver...

Hallo all you wonderful people. About a month ago I had a significant flare of P...

humlies

•1 year ago

13 Replies

Aches, pains and lots of inflammation.....going backwards

Hi All, hope ye are doing ok.I was diagnosed with OMR in May 2020 and shortly connected with this forum then. I'm active in that I read my e-mails everyday...

Hi All, hope ye are doing ok.I was diagnosed with OMR in May 2020 and shortly co...

lkcreedon

•1 year ago

20 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2023

Two free webinars in PMRGCAuk Week

hypothyroidism

Itchy, watery eyes after mowing

Neck and shoulder pain

Does Lansaprazole irritate the stomach

Rheumy says reduce....

Does this sound like adrenals?

tapered too fast

diarrhea and pmr

hip replacement surgery

waiting for the result of a 24 urine test as possible hypercalcaemia

Gluten free diet

ok to taper from 10 back to half mg after 7 days due to slight flareup

Help please

Starting again?

Trumpet Player

Pesky Adrenals at work?

A cure for back pain?

Teeth sensitivity

My Story

Lower back pain ?

Upped my prednisone for knee inflammation and now I'm not sure how to reduce back to 1.5 mg.

Update on problems I had with my head last year

Increase or Decrease

Further COVID boosters

Alendronic Acid taken with bottled mineral water by mistake. Should I be worried? Should I take it again tomorrow with tap water? Any advice

Fever

Newswire Spring 2023 - my thoughts

too much going on - how much to taper after last flare?

Aches, pains and lots of inflammation.....going backwards

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